In:
it - Information Technology, Walter de Gruyter GmbH, Vol. 61, No. 5-6 ( 2019-10-25), p. 219-229
Abstract:
Today, medical data such as diagnoses, procedures, imaging reports and laboratory tests, are not only collected in context of primary research and clinical studies. In addition, citizens are tracking their daily steps, food intake, sport exercises, and disease symptoms via mobile phones and wearable devices. In this context, the topic of “data donation” is drawing increased attention in science, politics, ethics and practice. This paper provides insights into the status quo of personal data donation in Germany and from a global perspective. As this topic requires a consideration of several perspectives, potential benefits and related, multifaceted challenges for citizens, patients and researchers are discussed. This includes aspects such as data quality & accessibility, privacy and ethical considerations.
Type of Medium:
Online Resource
ISSN:
2196-7032
,
1611-2776
DOI:
10.1515/itit-2019-0024
Language:
English
Publisher:
Walter de Gruyter GmbH
Publication Date:
2019
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2102301-3
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144419-0
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165820-7
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2028598-X
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6242-X
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1146417-3
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