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  • 1
    Online Resource
    Online Resource
    Resilience From a Stakeholder Perspective: The Role of Next of Kin in Cancer Care
    Ovid Technologies (Wolters Kluwer Health) ; 2020
    In:  Journal of Patient Safety Vol. 16, No. 3 ( 2020-9), p. e205-e210
    Details
    In: Journal of Patient Safety, Ovid Technologies (Wolters Kluwer Health), Vol. 16, No. 3 ( 2020-9), p. e205-e210
    Abstract: The aim of this article was to provide new knowledge on how next of kin are co-creators of resilient performance, as seen from the viewpoint of the healthcare personnel and managers. The following research question guided the study: How are next of kin involved in shaping resilience within cancer care in hospitals? Methods The design of the study is a case study of cancer departments in two Norwegian hospitals. Data collection included a total of 32 qualitative semistructured interviews at two organizational levels (managers and staff). The data were analyzed by ways of a directed content analysis according to Hollnagel's Resilience in Health Care framework of resilience potentials (anticipate, monitor, respond, learn). Results Next of kin are involved in creating and maintaining resilience in cancer care by different kind of activities and in-depth insight into the patient's condition, which strengthen all resilience potentials of responding, anticipation, monitoring, and learning. We have identified nine areas in which next of kin are co-creators in shaping resilience. Next of kin are important stakeholders, both as safety experts and as safety resources, helping healthcare professionals provide quality and safety in the patient care process under difficult conditions. Next of kin's knowledge of the patient's history, their observation of the patient over time within the hospital, at home, and across care transitions are key elements of their contribution. Conclusions Next of kin complement healthcare professionals in all four potentials for resilient performance. The study suggests that the Resilience in Health Care framework takes into account the role of next of kin, as a stakeholder potential, because this has not previously been sufficiently considered.
    Type of Medium: Online Resource
    ISSN: 1549-8425 , 1549-8417
    URL: Article
    DOI: 10.1097/PTS.0000000000000532
    Language: English
    Publisher: Ovid Technologies (Wolters Kluwer Health)
    Publication Date: 2020
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  • 2
    Online Resource
    Online Resource
    Patients with delayed sleep-wake phase disorder show poorer executive functions compared to good sleepers
    Elsevier BV ; 2019
    In:  Sleep Medicine Vol. 54 ( 2019-02), p. 244-249
    Details
    In: Sleep Medicine, Elsevier BV, Vol. 54 ( 2019-02), p. 244-249
    Type of Medium: Online Resource
    ISSN: 1389-9457
    URL: Article
    DOI: 10.1016/j.sleep.2018.10.035
    Language: English
    Publisher: Elsevier BV
    Publication Date: 2019
    detail.hit.zdb_id: 2041737-8
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  • 3
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    Online Resource
    Next-of-kin involvement in improving hospital cancer care quality and safety – a qualitative cross-case study as basis for theory development
    Springer Science and Business Media LLC ; 2018
    In:  BMC Health Services Research Vol. 18, No. 1 ( 2018-12)
    Details
    In: BMC Health Services Research, Springer Science and Business Media LLC, Vol. 18, No. 1 ( 2018-12)
    Type of Medium: Online Resource
    ISSN: 1472-6963
    URL: Article
    DOI: 10.1186/s12913-018-3141-7
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2018
    detail.hit.zdb_id: 2050434-2
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  • 4
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    Online Resource
    Family-based inpatient treatment for adolescent anorexia nervosa: a thematic analysis of former patients’ post-treatment reflections
    Informa UK Limited ; 2021
    In:  Eating Disorders Vol. 29, No. 4 ( 2021-07-04), p. 390-407
    Details
    In: Eating Disorders, Informa UK Limited, Vol. 29, No. 4 ( 2021-07-04), p. 390-407
    Type of Medium: Online Resource
    ISSN: 1064-0266 , 1532-530X
    URL: Article
    DOI: 10.1080/10640266.2019.1656469
    Language: English
    Publisher: Informa UK Limited
    Publication Date: 2021
    detail.hit.zdb_id: 2021638-5
    SSG: 5,2
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  • 5
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    Online Resource
    Developing a Next-of-Kin Involvement Guide in Cancer Care—Results From a Consensus Process
    Ovid Technologies (Wolters Kluwer Health) ; 2021
    In:  Cancer Nursing Vol. 44, No. 6 ( 2021-11), p. E447-E457
    Details
    In: Cancer Nursing, Ovid Technologies (Wolters Kluwer Health), Vol. 44, No. 6 ( 2021-11), p. E447-E457
    Abstract: In hospital cancer care, there is no set standard for next-of-kin involvement in improving the quality of care and patient safety. There is therefore a growing need for tools and methods that can guide this complex area. Objective The aim of this study was to present the results from a consensus-based participatory process of designing a guide for next-of-kin involvement in hospital cancer care. Method A consensus process based on a modified Nominal group technique was applied with 20 stakeholder participants from 2 Norwegian university hospitals. Result The participants agreed on the 5 most important priorities for hospital cancer care services when involving next-of-kin. The results showed that next-of-kin stakeholders, when proactively involved, are important resources for the patient and healthcare professionals in terms of contribution to quality and safety in hospitals. Suggested means of involving next-of-kin were closer interaction with external support bodies, integration in clinical pathways, adjusted information, and training healthcare professionals. Conclusion In this study, we identified topics and elements to include in a next-of-kin involvement guide to support quality and safety in hospital cancer care. The study raises awareness of the complex area of next-of-kin involvement and contributes with theory development and knowledge translation in an involvement guide tailored for use by healthcare professionals and managers in everyday clinical practice. Implications for Practice Service providers can use the guide to formulate intentions and make decisions with suggestions and priorities or as a reflexive tool for organizational improvement.
    Type of Medium: Online Resource
    ISSN: 1538-9804 , 0162-220X
    URL: Article
    DOI: 10.1097/NCC.0000000000000869
    Language: English
    Publisher: Ovid Technologies (Wolters Kluwer Health)
    Publication Date: 2021
    detail.hit.zdb_id: 2049755-6
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  • 6
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    Online Resource
    Benefits of clinical criteria and high-throughput sequencing for diagnosing children with syndromic craniosynostosis
    Springer Science and Business Media LLC ; 2021
    In:  European Journal of Human Genetics Vol. 29, No. 6 ( 2021-06), p. 920-929
    Details
    In: European Journal of Human Genetics, Springer Science and Business Media LLC, Vol. 29, No. 6 ( 2021-06), p. 920-929
    Abstract: An accurate diagnosis of syndromic craniosynostosis (CS) is important for personalized treatment, surveillance, and genetic counselling. We describe detailed clinical criteria for syndromic CS and the distribution of genetic diagnoses within the cohort. The prospective registry of the Norwegian National Unit for Craniofacial Surgery was used to retrieve individuals with syndromic CS born between 1 January 2002 and 30 June 2019. All individuals were assessed by a clinical geneticist and classified using defined clinical criteria. A stepwise approach consisting of single-gene analysis, comparative genomic hybridization (aCGH), and exome-based high-throughput sequencing, first filtering for 72 genes associated with syndromic CS, followed by an extended trio-based panel of 1570 genes were offered to all syndromic CS cases. A total of 381 individuals were registered with CS, of whom 104 (27%) were clinically classified as syndromic CS. Using the single-gene analysis, aCGH, and custom-designed panel, a genetic diagnosis was confirmed in 73% of the individuals ( n  = 94). The diagnostic yield increased to 84% after adding the results from the extended trio-based panel. Common causes of syndromic CS were found in 53 individuals (56%), whereas 26 (28%) had other genetic syndromes, including 17 individuals with syndromes not commonly associated with CS. Only 15 individuals (16%) had negative genetic analyses. Using the defined combination of clinical criteria, we detected among the highest numbers of syndromic CS cases reported, confirmed by a high genetic diagnostic yield of 84%. The observed genetic heterogeneity encourages a broad genetic approach in diagnosing syndromic CS.
    Type of Medium: Online Resource
    ISSN: 1018-4813 , 1476-5438
    URL: Article
    DOI: 10.1038/s41431-020-00788-4
    RVK:
    XA 10000
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2021
    detail.hit.zdb_id: 2005160-8
    SSG: 12
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  • 7
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    Online Resource
    Entrepreneurial firms in STI and DUI mode clusters: do they need differentiated cluster facilitation?
    Informa UK Limited ; 2017
    In:  European Planning Studies Vol. 25, No. 6 ( 2017-06-03), p. 904-922
    Details
    In: European Planning Studies, Informa UK Limited, Vol. 25, No. 6 ( 2017-06-03), p. 904-922
    Type of Medium: Online Resource
    ISSN: 0965-4313 , 1469-5944
    URL: Article
    DOI: 10.1080/09654313.2017.1300238
    Language: English
    Publisher: Informa UK Limited
    Publication Date: 2017
    detail.hit.zdb_id: 1168776-9
    detail.hit.zdb_id: 2015349-1
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  • 8
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    External support and personal agency - young persons’ reports on recovery after family-based inpatient treatment for anorexia nervosa: a qualitative descriptive study
    Springer Science and Business Media LLC ; 2020
    In:  Journal of Eating Disorders Vol. 8, No. 1 ( 2020-12)
    Details
    In: Journal of Eating Disorders, Springer Science and Business Media LLC, Vol. 8, No. 1 ( 2020-12)
    Abstract: Recommended treatment for adolescent anorexia nervosa (AN) is usually family-based and an overarching treatment aim is to empower the parents to manage the difficult meals and aid their child toward recovery. While family-based treatment prioritize collaborating with the parents, understanding the young persons’ views on recovery is also important. Understanding the young person’s views and ideas is relevant as this may facilitate the therapeutic alliance and thus aid the therapeutic process. The purpose of the present study was to investigate the reflections of young persons with a lived experience of anorexia nervosa, and what factors they consider important for the recovery process. All participants had been provided with a family-based inpatient treatment program, a program inspired by the core features of outpatient family-based treatment. Methods Participants ( n  = 37) presented with an extensive treatment history, including outpatient and inpatient treatment for AN. Interview transcripts were analyzed by applying a predominantly inductive thematic approach to generate themes across participants. Results The qualitative analysis generated a thematic structure entailing three levels. The superordinate theme, “Recovery is a long and winding journey: recognizing the need for support and highlighting the need for action”, captured three main themes, “Realizing you have a problem”, “Being involved in important relationships”, and “Giving treatment a real chance”. Conclusions Our results demonstrated that although young persons with a lived experience of anorexia nervosa recognized the importance of support from others, they placed a distinctive emphasis on self-responsibility and determination. We recommend clinicians working within the recommended family-based treatment frameworks be curious about young patient’s subjective perspectives of the recovery process, as connecting with their views can potentially strengthen therapeutic relationships and facilitate change. Plain English summary Recommended treatment for adolescent anorexia nervosa is usually family-based. These recommendations are supported by decades of research. In family-based treatment the overarching aim is to empower the young person’s parents to manage and take charge of the difficult situation caused by the eating disorder. As recommended family-based treatments usually prioritize collaborating with the parents, it is important to be curious on the adolescents own views of what is regarded as important for the recovery process. The present study offers insights into factors considered important to the recovery process by young persons with lived experience of AN. Although voicing the importance of enlisting support from families, friends, and loved ones, the young participants distinctly emphasized their own responsibility, motivation and self-determination as critical factors for recovery. Inspired by our findings, we recommend that clinicians address the young patient’s own preferred ideas for recovery during treatment.
    Type of Medium: Online Resource
    ISSN: 2050-2974
    URL: Article
    DOI: 10.1186/s40337-020-00293-5
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2020
    detail.hit.zdb_id: 2699357-0
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  • 9
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    Online Resource
    Family members’ reflections upon a family-based inpatient treatment program for adolescent anorexia nervosa: a thematic analysis
    Springer Science and Business Media LLC ; 2021
    In:  Journal of Eating Disorders Vol. 9, No. 1 ( 2021-12)
    Details
    In: Journal of Eating Disorders, Springer Science and Business Media LLC, Vol. 9, No. 1 ( 2021-12)
    Abstract: Family-based outpatient treatment is usually recommended as the treatment of choice when a child develops anorexia nervosa. However, some young persons will inevitably require higher levels of care. Qualitative research on family perspectives may help inform strategies to adapt family-based practices into intensified treatment settings. Our overarching aim was to investigate family members’ perspectives following a family-based inpatient treatment program for adolescent anorexia nervosa and to discuss clinical implications for treatment providers. Methods A subsample of eight families taking part in a naturalistic outcome study at a specialized eating disorder unit participated in the study (8 patients, 14 parents, and 10 siblings). The thematic analyses were inductive, predominantly descriptive, and guided by a multi-perspective framework. Results Five main themes were identified: 1: Expectations and evaluation of needs. Entering treatment from different vantage points , 2: Interactions with peers during the admission as highly beneficial or problematic , 3: Perspectives on staff expertise and the eating disorder unit’s structure , 4: Influencing within family relationships in different ways , and 5: Being admitted is at best only half the job: reflections on leaving the eating disorder unit . Conclusions Our study offers insight into how former inpatients and their family members experienced an inpatient treatment program designed to align treatment with the central elements of an outpatient family-based treatment approach for adolescent anorexia nervosa. Overall, the findings support emerging research underlining the necessity of strengthening the family-based treatment approach within intensified treatment settings. Moreover, the results emphasized the need for more knowledge on how to optimize inpatient treatment as well as the importance of providing smooth transitions between care settings.
    Type of Medium: Online Resource
    ISSN: 2050-2974
    URL: Article
    DOI: 10.1186/s40337-020-00360-x
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2021
    detail.hit.zdb_id: 2699357-0
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  • 10
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    Online Resource
    Minding the adolescent in family-based inpatient treatment for anorexia nervosa: a qualitative study of former inpatients’ views on treatment collaboration and staff behaviors
    Springer Science and Business Media LLC ; 2019
    In:  BMC Psychology Vol. 7, No. 1 ( 2019-12)
    Details
    In: BMC Psychology, Springer Science and Business Media LLC, Vol. 7, No. 1 ( 2019-12)
    Abstract: For some young persons diagnosed with anorexia nervosa, treatment will inevitably involve phases where hospitalization is required. Inspired by the encouraging evidence-base for outpatient family-based treatment for adolescent anorexia nervosa, clinicians and program developers have started to incorporate outpatient family-based treatment principles into higher levels of care. During family-based inpatient treatment, collaborative efforts are largely directed toward the parents of the adolescent. Consequently, the therapeutic focus on the young person is more of an indirect one. With this study we aimed to understand how young persons with lived experience from a family-based inpatient treatment setting, where the adolescents were admitted together with their parents, viewed therapeutic aspects related to staff-patient collaboration and staff-related behaviors. Methods Thirty-seven semi-structured interviews of former adolescent inpatients were conducted. Participants’ post-treatment reflections were inductively analyzed by applying a thematic analytic framework. Results Based upon user perspectives from a treatment setting highly influenced by a family therapeutic approach, findings revealed that former inpatients prefer tailored treatment and a collaborative approach. Eight subthemes constituting two main themes emerged: 1) There are no ready-made solutions. Staff should facilitate collaboration by tailoring treatment toward the young person’s perspectives, and 2) Emphasizing skills that matter. Staff should display a non-judgmental stance, educate patients, stimulate motivation, enable activities and prevent iatrogenic effects during the stay. Conclusions This study adds valuable user perspectives to the ongoing work with adapting family-based frameworks into higher levels of care. Clinicians could benefit from viewing their practice from the standpoint of the young person’s post-treatment reflections. From their unique perspectives as having lived experience and hence, “insider knowledge” with a specific treatment situation, clinicians are reminded of the importance of being mindful on the young persons’ views.
    Type of Medium: Online Resource
    ISSN: 2050-7283
    URL: Article
    DOI: 10.1186/s40359-019-0348-2
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2019
    detail.hit.zdb_id: 2705921-2
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