In:
Neurodegenerative Disease Management, Future Medicine Ltd, Vol. 11, No. 1 ( 2021-02), p. 21-33
Abstract:
Lay abstract Charcot-Marie-Tooth disease (CMT) is a rare condition causing weakness of the limbs that worsens gradually over time. This study will explore the impact of CMT on patients and caregivers. This is a digital study of approximately 2000 adults in 6 countries with CMT. Participants will use a smartphone application to provide their consent and contribute data. Data will be collected via a personal profile, covering demographics, lifestyle, diagnosis and treatment and a selection of generic and disease-specific surveys. Data analysis will be conducted upon registration of the 1000th participant and at 12-month intervals from launch. This study is designed to help researchers and clinicians understand the impact of CMT and the unmet needs of patients.
Type of Medium:
Online Resource
ISSN:
1758-2024
,
1758-2032
DOI:
10.2217/nmt-2020-0044
Language:
English
Publisher:
Future Medicine Ltd
Publication Date:
2021
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