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  • Wiley  (6)
  • 1
    Online Resource
    Online Resource
    Parents’ experiences of living with a child with Paediatric Feeding Disorder: An interview study in Sweden
    Wiley ; 2022
    In:  Scandinavian Journal of Caring Sciences
    Details
    In: Scandinavian Journal of Caring Sciences, Wiley
    Abstract: Children affected by Paediatric Feeding Disorder (PFD) cannot consume enough nourishment by mouth. PFD is highly prevalent and can affect the child's growth and development as well as family life. Aim To illuminate Swedish parents’ experiences of living with a child with PFD. Method Semi‐structured interviews via telephone or video calls were conducted with 14 purposefully recruited mothers and six fathers. The interviews were analysed using content analysis. Ethics approval was obtained, and the parents all gave informed consent. Results Four overarching themes emerged: Living with stress; Advocating for the child; Adapting family life; and Gaining hope. Parents described fearing for their child's life and health, feeling pressure over meals and being emotionally affected. They told of experiencing a lack of understanding from healthcare professionals, friends and family. Parents expressed a struggle for help, the need for early interventions and more effective treatment, and developed strategies for coping with the demands of feeding and caring for their child, accepting their living reality. Finding support from a network helped, but the adaptation of daily life affected their family relations. They felt gratitude towards helpful professionals and relief and joy when their child was doing better. Conclusions A more cohesive chain of care is important for children with PFD, and guidelines and educational support for healthcare providers are needed. Parental experiences provide a base for knowledge for further development of early detection and intervention for children with PFD.
    Type of Medium: Online Resource
    ISSN: 0283-9318 , 1471-6712
    URL: Article
    DOI: 10.1111/scs.13070
    Language: English
    Publisher: Wiley
    Publication Date: 2022
    detail.hit.zdb_id: 2031090-0
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  • 2
    Online Resource
    Online Resource
    Home care services for sick children: Healthcare professionals’ conceptions of challenges and facilitators
    Wiley ; 2017
    In:  Journal of Clinical Nursing Vol. 26, No. 17-18 ( 2017-09), p. 2784-2793
    Details
    In: Journal of Clinical Nursing, Wiley, Vol. 26, No. 17-18 ( 2017-09), p. 2784-2793
    Abstract: To explore healthcare professionals’ conceptions of caring for sick children in home care services. Background Families often prefer home care to hospital care, and the number of home care services for children is increasing. Caring for children at home has been recognised as challenging for healthcare professionals in home care services used to providing care predominately for adults. Design An inductive qualitative design. Method Seven focus group interviews were performed with 36 healthcare professionals from multidisciplinary home care services. Data were analysed stepwise using a phenomenographic analysis. Results Three description categories emerged: “A challenging opportunity”, “A child perspective”, and “Re‐organise in accordance with new prerequisites.” Providing home care services for children was conceived to evoke both professional and personal challenges such as feelings of inadequacy and fear and professional growth such as increased competence and satisfaction. Conceptions of whether the home or the hospital was the best place for care differed. Adapting to the child's care was conceived as important. Cooperation with paediatric departments and a well‐functioning team work were important organisational aspects. Conclusion Providing home care for children was a challenging but rewarding task for healthcare professionals used to care for adults. To provide care with a child perspective was experienced as important even though there were conflicting conceptions of how this should be done. Close cooperation with paediatric departments and teamwork were prerequisites that make up for the low number of paediatric patients and facilitate confidence and competence. Relevance to clinical practice A sufficient number of referred children and enabling healthcare professionals to be part of the re‐organising and implementation processes might facilitate the home care services for sick children. Enough time and good teamwork must be emphasised. Early referrals, continuous cooperation with paediatric clinics complemented with individualised support when a child is referred is desirable.
    Type of Medium: Online Resource
    ISSN: 0962-1067 , 1365-2702
    URL: Issue
    URL: Article
    DOI: 10.1111/jocn.2017.26.issue-17pt18
    DOI: 10.1111/jocn.13821
    Language: English
    Publisher: Wiley
    Publication Date: 2017
    detail.hit.zdb_id: 2006661-2
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  • 3
    Online Resource
    Online Resource
    Peer learning in clinical placements in psychiatry for undergraduate nursing students: preceptors and students’ perspective
    Wiley ; 2021
    In:  Nursing Open Vol. 8, No. 1 ( 2021-01), p. 54-62
    Details
    In: Nursing Open, Wiley, Vol. 8, No. 1 ( 2021-01), p. 54-62
    Abstract: To describe the experiences of peer learning in psychiatric inpatient settings during clinical placement of undergraduate nursing students and to highlight the possibility for peer learning in psychiatric outpatient settings. Design A qualitative inductive design. Method Questionnaires with 14 students and 12 preceptors in inpatient and outpatient care and interviews with one student and one preceptor in outpatient care were analysed with content analysis. Results Students and preceptors perceived learning benefits with peer learning. They described how learning increased through exchange of knowledge and how collaboration created security and independence, structured learning activities were appreciated as a learning tool. Incompatibility of students was an issue that could be overcome. Peer learning was perceived to contribute to a secure learning atmosphere, increased self‐confidence and to provide a deeper understanding of psychiatric nursing. Peer learning was described as promoting discussion and reflection on practice and preparing nursing students for their future profession.
    Type of Medium: Online Resource
    ISSN: 2054-1058 , 2054-1058
    URL: Issue
    URL: Article
    DOI: 10.1002/nop2.v8.1
    DOI: 10.1002/nop2.602
    Language: English
    Publisher: Wiley
    Publication Date: 2021
    detail.hit.zdb_id: 2809556-X
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  • 4
    Online Resource
    Online Resource
    Accessibility, utilisation and acceptability of a county‐based home care service for sick children in Sweden
    Wiley ; 2019
    In:  Scandinavian Journal of Caring Sciences Vol. 33, No. 4 ( 2019-12), p. 824-832
    Details
    In: Scandinavian Journal of Caring Sciences, Wiley, Vol. 33, No. 4 ( 2019-12), p. 824-832
    Abstract: Home care service ( HCS ) for sick children is a complex healthcare service, which can be organised in various models. Despite the possibility to support family everyday life, the accessibility and utilisation may still be limited. The aim of this study was to (i) determine characteristics in referrals to county‐based HCS , (ii) determine characteristics of referred children and (iii) assess acceptability of parents and children in county‐based HCS . Methods Data on characteristics of referrals and referred children were collected from medical records of children 0–17 years of age, referred to eight HCS units during 2015–2018. Data on parental and child overall experience, satisfaction of, safety with, and preference for care, were collected from parents by a questionnaire. Descriptive and comparative statistics were used to analyse the data. Results Three hundred and fifty‐five referrals led to one or more periods of HCS for 171 children in various ages with a wide range of illnesses. Children with cancer (30%) composed the largest group and administration of intravenous antibiotics accounted for 56% of the care tasks. Seven per cent of the referrals were to palliative home care. Thirty‐eight referrals of 34 children were refused. There was an uneven distribution of the indication for referral, acceptance rate and diagnoses of children among HCS units. Parents reported their and their child's experience with the HCS visit as highly positive and preferred home care to hospital care in over 96% of the HCS in 212 visits. Conclusion County‐based HCS constitutes a supplement to hospital care for sick children with various illnesses through different stages of acute and long‐term illness and at end of life, with high levels of acceptability. Few referrals and variation in referral characteristics and acceptance rate of referrals between HCS units led to unequal and inequitable accessibility and utilisation of HCS .
    Type of Medium: Online Resource
    ISSN: 0283-9318 , 1471-6712
    URL: Issue
    URL: Article
    DOI: 10.1111/scs.v33.4
    DOI: 10.1111/scs.12678
    Language: English
    Publisher: Wiley
    Publication Date: 2019
    detail.hit.zdb_id: 2031090-0
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  • 5
    Online Resource
    Online Resource
    Healthcare costs and productivity losses associated with county‐based home‐care service for sick children in Sweden
    Wiley ; 2020
    In:  Scandinavian Journal of Caring Sciences Vol. 34, No. 4 ( 2020-12), p. 1054-1062
    Details
    In: Scandinavian Journal of Caring Sciences, Wiley, Vol. 34, No. 4 ( 2020-12), p. 1054-1062
    Abstract: The aim of this study was to estimate the healthcare costs and productivity losses associated with county‐based home‐care services (HCS) for sick children. Methods In this observational follow‐up study, a combination of hospital care and HCS was compared to estimated alternative care solely at the hospital. Data on one year of healthcare utilisation for 32 children, supplied by the hospital and HCS, were collected from administrative systems. Corresponding healthcare unit prices were collected from healthcare pricelists. The human‐capital approach was applied to estimate productivity losses and the value of productivity losses for 25 parents. Family characteristics, including parental work absenteeism and income, were collected by a questionnaire distributed to parents at five time points during a year. Descriptive and comparative statistics were used for analysis and carried out with ethical approval. Results Healthcare costs for children receiving a combination of hospital care and HCS varied among children with estimated average healthcare cost savings of SEK 50 101 per child compared to the alternative of care provided only in the hospital. The reduced costs were related to children receiving nonpalliative HCS care tasks. Average annual productivity losses due to parental work absenteeism were estimated at 348 hours with an associated monetary value estimated at SEK 137 524 per parent. Conclusion County‐based HCS, provided as complement to and substitute for hospital care for ill children, does not increase healthcare cost and should be a prioritized area when organising paediatric health care. Productivity losses vary greatly among parents and are pronounced also when children receive HCS with signs of gender‐related differences.
    Type of Medium: Online Resource
    ISSN: 0283-9318 , 1471-6712
    URL: Issue
    URL: Article
    DOI: 10.1111/scs.v34.4
    DOI: 10.1111/scs.12815
    Language: English
    Publisher: Wiley
    Publication Date: 2020
    detail.hit.zdb_id: 2031090-0
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  • 6
    Online Resource
    Online Resource
    Parents′ experience of living with a baby with infantile colic - a phenomenological hermeneutic study : Parents’ experience of infantile colic
    Wiley ; 2011
    In:  Scandinavian Journal of Caring Sciences Vol. 25, No. 2 ( 2011-06), p. 317-324
    Details
    In: Scandinavian Journal of Caring Sciences, Wiley, Vol. 25, No. 2 ( 2011-06), p. 317-324
    Type of Medium: Online Resource
    ISSN: 0283-9318
    URL: Issue
    URL: Article
    DOI: 10.1111/scs.2011.25.issue-2
    DOI: 10.1111/j.1471-6712.2010.00829.x
    Language: English
    Publisher: Wiley
    Publication Date: 2011
    detail.hit.zdb_id: 2031090-0
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