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  • 1
    Online Resource
    Online Resource
    Guidelines as governance: Critical reflections from a documentary analysis of guidelines to support user involvement in research
    Wiley ; 2021
    In:  Nursing Inquiry Vol. 28, No. 1 ( 2021-01)
    Details
    In: Nursing Inquiry, Wiley, Vol. 28, No. 1 ( 2021-01)
    Abstract: Although guidelines to regulate user involvement in research have been advocated and implemented for several years, literature still describes the process as challenging. In this qualitative study, we take a critical view on guidelines that are developed to regulate and govern the collaboration process of user involvement in research. We adapt a social constructivist view of guidelines and our aim is to explore how guidelines construct the perception of users and researchers and thus the process of involvement. Twenty‐two guidelines published between 2006 and 2019 were analyzed iteratively. The analysis focuses on values which are emphasized in the guidelines on the distribution of entities, knowledge, and tasks between users and researchers. The analysis indicates that users and researchers are constructed differently; researchers are mainly constructed as responsible initiators and caretakers, while users are constructed as powerless and vulnerable. The guidelines portray the collaboration process as harmonious and assume a normative perspective. In doing so, challenges described in the literature related to power imbalances are not addressed. Based on these findings, we ask if these guidelines might function to maintain existing power imbalances between users and researchers.
    Type of Medium: Online Resource
    ISSN: 1320-7881 , 1440-1800
    URL: Issue
    URL: Article
    DOI: 10.1111/nin.v28.1
    DOI: 10.1111/nin.12378
    Language: English
    Publisher: Wiley
    Publication Date: 2021
    detail.hit.zdb_id: 2010171-5
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  • 2
    Online Resource
    Online Resource
    In search of the changeable: An analysis of visual representations of nursing in Norwegian and Danish professional nursing journals, 1965–2016
    Wiley ; 2020
    In:  Nursing Inquiry Vol. 27, No. 3 ( 2020-07)
    Details
    In: Nursing Inquiry, Wiley, Vol. 27, No. 3 ( 2020-07)
    Abstract: In this study, we demonstrate how perceptions of nursing are constructed in close connection with the development of the Nordic welfare states. Drawing on Gillian Rose's framework for analysing the social and political implications of visual materials, we analysed selected visual representations of nursing published in Danish and Norwegian professional nursing journals in the period 1965 to 2016. The analyses were conducted in an iterative process in three phases. First, we reviewed all visuals spanning the entire period to obtain an overview of developmental trends in the material. Second, selected visuals and associated captions were subjected to more thorough analysis. Third, we further examined and discussed the visuals in light of societal and political movements and ideologies in Danish and Norwegian healthcare policies over this period. Our analysis shows that visual representations of the nurse–patient relationship and of the patient's and the nurse's roles and responsibilities changed over this period and that the visualisations corresponded with and supported developments in the Danish and Norwegian welfare states as these first consolidated and then moved towards individualisation and the competition state. Our study demonstrates that nurses in these states are political actors implementing health policies embedded in various knowledge regimes.
    Type of Medium: Online Resource
    ISSN: 1320-7881 , 1440-1800
    URL: Issue
    URL: Article
    DOI: 10.1111/nin.v27.3
    DOI: 10.1111/nin.12340
    Language: English
    Publisher: Wiley
    Publication Date: 2020
    detail.hit.zdb_id: 2010171-5
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  • 3
    Online Resource
    Online Resource
    Negotiating Diet in Networks : A Cross-European Study of the Experiences of Managing Type 2 Diabetes
    SAGE Publications ; 2017
    In:  Qualitative Health Research Vol. 27, No. 3 ( 2017-02), p. 299-310
    Details
    In: Qualitative Health Research, SAGE Publications, Vol. 27, No. 3 ( 2017-02), p. 299-310
    Abstract: Food and diet are central aspects of diabetes self-management but the relevance of social networks for the way people are supported in their management of type 2 diabetes is often under-acknowledged. In this article, we aimed to explore the coalescences between these two phenomena among people with type 2 diabetes to increase knowledge of interactions within social network related to daily diet. The article is based on 125 qualitative interviews with individuals with type 2 diabetes from five European countries. Based on assumptions that people with chronic illnesses reshape relationships through negotiation, we analyzed negotiations of food at different levels of network. The respondents’ reflections indicate that there are complex negotiations that influence self-management and food, including support, knowledge, and relationships within families; attention and openness in social situations; and the premises and norms of society.
    Type of Medium: Online Resource
    ISSN: 1049-7323 , 1552-7557
    URL: Article
    DOI: 10.1177/1049732315610318
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2017
    detail.hit.zdb_id: 2010333-5
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  • 4
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    Online Resource
    “It Enables Us to Reflect More on Nutrition”: A Mixed Methods Cross-Sectional Study on Preclinical Digital Training in Nurse Education
    MDPI AG ; 2022
    In:  Education Sciences Vol. 13, No. 1 ( 2022-12-28), p. 32-
    Details
    In: Education Sciences, MDPI AG, Vol. 13, No. 1 ( 2022-12-28), p. 32-
    Abstract: Adequate nutrition is a basic human right, yet older adults are at high risk of malnutrition. Nutrition is not a part of most nursing curricula. Limited research has been done on digital case-based learning (CBL) in breakout rooms (digital groups); therefore, the aim was to develop and evaluate a preclinical digital CBL unit (3-h synchronously and with an asynchronously flipped classrooms approach) for prevention and treatment of malnutrition and to explore nursing students’ experiences and learning outcomes. Different scenarios for two fictive cases were created in which malnutrition-related challenges were included (such as terminal care) and embedded on the ThingLink platform. In an explorative mixed methods cross-sectional study design, students (n = 78) completed an online evaluation. The results revealed that students wanted more synchronous interaction with educators and less time alone in breakout rooms due to their peers being unprepared, passive and unfamiliar and not turning on their cameras or logging on too late. The learning outcome from quizzes and word clouds were high, but the added pedagogical value of ThingLink seemed low. This explorative study sheds light on central issues related to the use of technology in nurse education, resistance against student active methods and digital pedagogy.
    Type of Medium: Online Resource
    ISSN: 2227-7102
    URL: Article
    DOI: 10.3390/educsci13010032
    Language: English
    Publisher: MDPI AG
    Publication Date: 2022
    detail.hit.zdb_id: 2704213-3
    SSG: 5,3
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  • 5
    Online Resource
    Online Resource
    ‘They just came with the medication dispenser’- a qualitative study of elderly service users’ involvement and welfare technology in public home care services
    Springer Science and Business Media LLC ; 2021
    In:  BMC Health Services Research Vol. 21, No. 1 ( 2021-12)
    Details
    In: BMC Health Services Research, Springer Science and Business Media LLC, Vol. 21, No. 1 ( 2021-12)
    Abstract: Public home care for the elderly is a key area in relation to improving health care quality. It is an important political goal to increase elderly people’s involvement in their care and in the use of welfare technology. The aim of this study was to explore elderly service users’ experience of user involvement in the implementation and everyday use of welfare technology in public home care services. Method This qualitative study has an explorative and descriptive design. Sixteen interviews of service users were conducted in five different municipalities over a period of six months. The data were analysed using reflexive thematic analysis. Results Service users receiving public home care service are not a homogenous group, and the participants had different wishes and needs as regards user involvement and the use of welfare technology. The analysis led to four main themes: 1) diverse preferences as regards user involvement, 2) individual differences as regards information, knowledge and training, 3) feeling safe and getting help, and 4) a wish to stay at home for as long as possible. Conclusion The results indicated that user involvement was only to a limited extent an integral part of public home care services. Participants had varying insight into and interest in welfare technology, which was a challenge for user involvement. User involvement must be facilitated and implemented in a gentle way, highlighting autonomy and collaboration, and with the focus on respect, reciprocity and dialogue.
    Type of Medium: Online Resource
    ISSN: 1472-6963
    URL: Article
    DOI: 10.1186/s12913-021-06243-4
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2021
    detail.hit.zdb_id: 2050434-2
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  • 6
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    Online Resource
    User involvement in the implementation of welfare technology in home care services: The experience of health professionals—A qualitative study
    Wiley ; 2020
    In:  Journal of Clinical Nursing Vol. 29, No. 21-22 ( 2020-11), p. 4007-4019
    Details
    In: Journal of Clinical Nursing, Wiley, Vol. 29, No. 21-22 ( 2020-11), p. 4007-4019
    Abstract: The aim of this study is to learn more about factors that promote or inhibit user involvement among health professionals when implementing welfare technology in home care services. Background It is a health policy goal to increase the use of welfare technology in order to address some of the challenges that healthcare services are facing. Health professionals' involvement is important for the successful implementation of welfare technology in home care services. Design The study has an explorative and descriptive longitudinal design based on a qualitative approach. Five focus group interviews were conducted with 16 nurses and assistant nurses from three different municipalities over a period of 2 years. The data were analysed using reflexive thematic analysis. The COREQ checklist was used. Results The analysis led to five main themes: competence a critical component, information and information lines, new ways of working, choice of welfare technology and change in patient services. From health professionals' perspective, there appeared to be a lack of preparedness for the change in the implementation of welfare technology entailed for home care services. The respondents experienced limited facilitation and opportunities for user involvement. Conclusion Health professionals want to be more involved but emphasised that competence, information and collaborative arenas are necessary factors if involvement in the process is to be increased. Competence affected some of the respondents' attitudes and willingness to use the technology. The respondents also experienced that the managements' focus on facilitation and interest in user involvement in addition to infrastructures that functioned in various ways had an impact on user involvement. Relevance to clinical practice The knowledge gained from this study about factors that promote or inhibit user involvement among health professionals could contribute to better preparedness for further implementation of welfare technology in the field of home care.
    Type of Medium: Online Resource
    ISSN: 0962-1067 , 1365-2702
    URL: Issue
    URL: Article
    DOI: 10.1111/jocn.v29.21-22
    DOI: 10.1111/jocn.15424
    Language: English
    Publisher: Wiley
    Publication Date: 2020
    detail.hit.zdb_id: 2006661-2
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  • 7
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    Online Resource
    Group affiliation in self‐management: support or threat to identity?
    Wiley ; 2017
    In:  Health Expectations Vol. 20, No. 1 ( 2017-02), p. 159-170
    Details
    In: Health Expectations, Wiley, Vol. 20, No. 1 ( 2017-02), p. 159-170
    Abstract: Self‐management is considered important in chronic illness, and contemporary health policy recommends participation in support groups for individuals with chronic conditions. Although withdrawal from or non‐participation in support groups is an important problem, there is limited knowledge about individuals' own motivation for participation in or withdrawal from self‐management support groups. Objectives To investigate how individuals with type 2 diabetes perceive participation in group‐based self‐management support. Design This is a qualitative focus group study using a semi‐structured interview guide. Setting and participants Sixteen participants diagnosed with type 2 diabetes were included in the study. Individuals with and without group affiliations were mixed in three focus groups to trigger discussions. In the analysis, reoccurring themes of engagement and discussions between participants were focused within a theoretical frame of institutional logic. The focus groups are seen as social spaces where participants construct identity. Results Both participation and non‐participation in group‐based self‐management support are associated with dealing with the stigma of having type 2 diabetes. Negotiations contribute to constructing an illness dignity as a response to the logic of moral responsibility for the disease. Discussion and conclusion Contemporary policy contributes to societal understandings of individuals with type 2 diabetes as morally inadequate. Our study shows that group‐based self‐management support may counteract blame and contribute in negotiations of identity for individuals with type 2 diabetes. This mechanism makes participation in groups beneficial for some but stigma inducing for others.
    Type of Medium: Online Resource
    ISSN: 1369-6513 , 1369-7625
    URL: Issue
    URL: Article
    DOI: 10.1111/hex.2017.20.issue-1
    DOI: 10.1111/hex.12448
    Language: English
    Publisher: Wiley
    Publication Date: 2017
    detail.hit.zdb_id: 2006357-X
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  • 8
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    Online Resource
    Coming from two different worlds—A qualitative, exploratory study of the collaboration between patient representatives and researchers
    Wiley ; 2019
    In:  Health Expectations Vol. 22, No. 3 ( 2019-06), p. 496-503
    Details
    In: Health Expectations, Wiley, Vol. 22, No. 3 ( 2019-06), p. 496-503
    Abstract: Interest in user involvement in research has increased and user involvement is increasingly seen as a prerequisite. Still, challenges in the collaboration process have been documented from both researchers' and users' perspective. Objective By bringing together researchers and patient representatives, this study explores and describes both parties' experiences with user involvement in research as they appear through interactions in a focus group. Design We apply a qualitative design using positioning theory as a theoretical framework. Setting and participants Researchers and patient representatives were mixed within 2 focus groups. Positioning theory was used to guide the analysis. Findings The discussion evolved around knowledge, equity and partnership, all related to power through constant negotiations of positions. Researchers and users ascribed various positions while discussing these topics. Various positions are seen as the result of different rights and duties in the research process. Power differences in the form of different rights and duties stand out as barriers. Being positioned as a partner was an important aspect for users in our study. Researchers assumed passive positions within the focus group, whereas users assumed active positions by expressing their wishes and needs. Discussion and conclusion Our study indicates that positions relating to status and knowledge in the involvement process are important. The findings suggest that the positions that users and researchers assume and ascribe throughout the process are constantly changing; however, the researchers tend to have more power. More studies are needed to understand how equity is perceived in user involvement in health research.
    Type of Medium: Online Resource
    ISSN: 1369-6513 , 1369-7625
    URL: Issue
    URL: Article
    DOI: 10.1111/hex.2019.22.issue-3
    DOI: 10.1111/hex.12875
    Language: English
    Publisher: Wiley
    Publication Date: 2019
    detail.hit.zdb_id: 2006357-X
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  • 9
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    Online Resource
    Empowering dialogues - the patients’ perspective : Empowering dialogues
    Wiley ; 2011
    In:  Scandinavian Journal of Caring Sciences Vol. 25, No. 2 ( 2011-06), p. 333-340
    Details
    In: Scandinavian Journal of Caring Sciences, Wiley, Vol. 25, No. 2 ( 2011-06), p. 333-340
    Type of Medium: Online Resource
    ISSN: 0283-9318
    URL: Issue
    URL: Article
    DOI: 10.1111/scs.2011.25.issue-2
    DOI: 10.1111/j.1471-6712.2010.00831.x
    Language: English
    Publisher: Wiley
    Publication Date: 2011
    detail.hit.zdb_id: 2031090-0
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  • 10
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    Online Resource
    Users' and researchers' construction of equity in research collaboration
    Wiley ; 2020
    In:  Health Expectations Vol. 23, No. 2 ( 2020-04), p. 296-305
    Details
    In: Health Expectations, Wiley, Vol. 23, No. 2 ( 2020-04), p. 296-305
    Abstract: Equity is described as an ideal in user involvement in research and is mentioned in the health service literature and in several guidelines. However, equity is described as being difficult to obtain and the concept is rarely clarified or concretized. Equity can be socially constructed. Objective This study explored users' and researchers' constructions of equity in research processes. Design and Method The study had a qualitative research design. Constructions of equity were analysed through the lens of positioning theory. Two focus group interviews consisting of both users and researchers were conducted. Findings The thirteen users and four researchers considered ‘equity’ as an important part of user involvement in research. Storylines about norms, responsibility, language, knowledge and usefulness evolved in the discussions. These storylines elucidated unequal access to rights and duties. Discussion and conclusion Users and researchers constructed equity in user involvement differently, but the difference was masked by an apparent agreement. Users and researchers drew on different storylines. The researchers emphasized the scientific discourse and although users acknowledged this discourse, they attempted to oppose this dominant discourse by drawing on a lay discourse. The identified constructions and negotiations of equity may contribute in new understandings of an equal collaboration in user involvement in research.
    Type of Medium: Online Resource
    ISSN: 1369-6513 , 1369-7625
    URL: Issue
    URL: Article
    DOI: 10.1111/hex.v23.2
    DOI: 10.1111/hex.13026
    Language: English
    Publisher: Wiley
    Publication Date: 2020
    detail.hit.zdb_id: 2006357-X
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