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1

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Patient-Reported Outcome Measures for Male Sexual Function Do Not Meet the Needs of Sexual Minority Men

Clements, Matthew B. ; Walters, Chasity B. ; Lynch, Kathleen A. ; [et al.]

Springer Science and Business Media LLC ; 2023

In: Archives of Sexual Behavior

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In: Archives of Sexual Behavior, Springer Science and Business Media LLC

Type of Medium: Online Resource

ISSN: 0004-0002 , 1573-2800

URL: Article

DOI: 10.1007/s10508-023-02688-2

Language: English

Publisher: Springer Science and Business Media LLC

Publication Date: 2023

detail.hit.zdb_id: 2014932-3

SSG: 12

SSG: 5,2

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2

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Encouraging patients to disclose their lesbian, gay, bisexual, or transgender (LGBT) status: oncology health care providers’ perspectives

Banerjee, Smita C ; Staley, Jessica M ; Alexander, Koshy ; [et al.]

Oxford University Press (OUP) ; 2020

In: Translational Behavioral Medicine Vol. 10, No. 4 ( 2020-10-08), p. 918-927

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In: Translational Behavioral Medicine, Oxford University Press (OUP), Vol. 10, No. 4 ( 2020-10-08), p. 918-927

Abstract: A compelling touted strategy for reducing discrimination towards lesbian, gay, bisexual, and transgender (LGBT) patients is improving communicative competence of health care providers (HCPs); however, evidence base for describing communication practices between HCPs and LGBT patients is scarce. The purpose of this study was to qualitatively examine HCP experiences and perspectives as they relate to patient sexual orientation and gender identity (SOGI) disclosure, perceived communication and structural/administrative challenges in interactions with LGBT patients, and suggestions for improving care of LGBT patients. The sample consisted of 1,253 HCPs, who provided open-ended responses to an online cross-sectional survey conducted at a Comprehensive Cancer Center in the Northeastern United States. The open-ended responses were inductively and deductively coded for key themes and sub-themes. The results demonstrated an array of useful communication strategies employed by oncology HCPs to encourage LGBT patients’ SOGI disclosure (direct questions regarding sexual orientation, use of the term “partner,” and using correct pronouns), communication and structural/administrative challenges faced by HCPs in providing care (HCP own fears and biases, transgender patient care, insurance issues, and procedural challenges for LGBT patients), and suggested recommendations from oncology HCPs to improve their care delivery for LGBT patients (more provider-based training, improving awareness of LGBT-friendly resources, establishing trusting relationships, and not assuming sexuality or gender identity). These findings have implications for developing and evaluating training programs to improve LGBT sensitivity and communication among HCPs, and encourage SOGI disclosure in an open and judgment-free health care environment.

Type of Medium: Online Resource

ISSN: 1869-6716 , 1613-9860

URL: Article

DOI: 10.1093/tbm/iby105

Language: English

Publisher: Oxford University Press (OUP)

Publication Date: 2020

detail.hit.zdb_id: 2586893-7

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3

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A Communication Training Program to Encourage Speaking‐Up Behavior in Surgical Oncology

D'Agostino, Thomas A. ; Bialer, Philip A. ; Walters, Chasity B. ; [et al.]

Wiley ; 2017

In: AORN Journal Vol. 106, No. 4 ( 2017-10), p. 295-305

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In: AORN Journal, Wiley, Vol. 106, No. 4 ( 2017-10), p. 295-305

Abstract: Patient safety in the OR depends on effective communication. We developed and tested a communication training program for surgical oncology staff members to increase communication about patient safety concerns. In phase one, 34 staff members participated in focus groups to identify and rank factors that affect speaking‐up behavior. We compiled ranked items into thematic categories that included role relations and hierarchy, staff rapport, perceived competence, perceived efficacy of speaking up, staff personality, fear of retaliation, institutional regulations, and time pressure. We then developed a communication training program that 42 participants completed during phase two. Participants offered favorable ratings of the usefulness and perceived effect of the training. Participants reported significant improvement in communicating patient safety concerns ( t 40 = –2.76, P = .009, d = 0.48). Findings offer insight into communication challenges experienced by surgical oncology staff members and suggest that our training demonstrates the potential to improve team communication.

Type of Medium: Online Resource

ISSN: 0001-2092 , 1878-0369

URL: Article

DOI: 10.1016/j.aorn.2017.08.003

Language: English

Publisher: Wiley

Publication Date: 2017

detail.hit.zdb_id: 2259224-6

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4

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InSight Care Pilot Program: Redefining Seeing a Patient

Daly, Bobby ; Kuperman, Gilad ; Zervoudakis, Alice ; [et al.]

American Society of Clinical Oncology (ASCO) ; 2020

In: JCO Oncology Practice Vol. 16, No. 10 ( 2020-10), p. e1050-e1059

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In: JCO Oncology Practice, American Society of Clinical Oncology (ASCO), Vol. 16, No. 10 ( 2020-10), p. e1050-e1059

Abstract: Early detection and management of symptoms in patients with cancer improves outcomes. However, the optimal approach to symptom monitoring and management is unknown. InSight Care is a mobile health intervention that captures symptom data and facilitates patient-provider communication to mitigate symptom escalation. PATIENTS AND METHODS: Patients initiating antineoplastic treatment at a Memorial Sloan Kettering regional location were eligible. Technology supporting the program included the following: a predictive model that identified patient risk for a potentially preventable acute care visit; a secure patient portal enabling communication, televisits, and daily delivery of patient symptom assessments; alerts for concerning symptoms; and a symptom-trending application. The main outcomes of the pilot were feasibility and acceptability evaluated through enrollment and response rates and symptom alerts, and perceived value evaluated on the basis of qualitative patient and provider interviews. RESULTS: The pilot program enrolled 100 high-risk patients with solid tumors and lymphoma (29% of new treatment starts v goal of 25%). Over 6 months of follow-up, the daily symptom assessment response rate was 56% (the goal was 50%), and 93% of patients generated a severe symptom alert. Patients and providers perceived value in the program, and archetypes were developed for program improvement. Enrolled patients were less likely to use acute care than were other high-risk patients. CONCLUSION: InSight Care was feasible and holds the potential to improve patient care and decrease facility-based care. Future work should focus on optimizing the cadence of patient assessments, the workforce supporting remote symptom management, and the return of symptom data to patients and clinical teams.

Type of Medium: Online Resource

ISSN: 2688-1527 , 2688-1535

URL: Article

DOI: 10.1200/OP.20.00214

Language: English

Publisher: American Society of Clinical Oncology (ASCO)

Publication Date: 2020

detail.hit.zdb_id: 3005549-0

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5

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Oncology patients’ preferences regarding sexual orientation and gender identity (SOGI) disclosure and room sharing

Alexander, Koshy ; Walters, Chasity B. ; Banerjee, Smita C.

Elsevier BV ; 2020

In: Patient Education and Counseling Vol. 103, No. 5 ( 2020-05), p. 1041-1048

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In: Patient Education and Counseling, Elsevier BV, Vol. 103, No. 5 ( 2020-05), p. 1041-1048

Type of Medium: Online Resource

ISSN: 0738-3991

URL: Article

DOI: 10.1016/j.pec.2019.12.006

Language: English

Publisher: Elsevier BV

Publication Date: 2020

detail.hit.zdb_id: 2019572-2

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6

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Oncology Patients' Perspectives on Remote Patient Monitoring for COVID-19

Daly, Bobby ; Lauria, Tara S. ; Holland, Jessie C. ; [et al.]

American Society of Clinical Oncology (ASCO) ; 2021

In: JCO Oncology Practice Vol. 17, No. 9 ( 2021-09), p. e1278-e1285

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In: JCO Oncology Practice, American Society of Clinical Oncology (ASCO), Vol. 17, No. 9 ( 2021-09), p. e1278-e1285

Abstract: Oncology patients are vulnerable to adverse outcomes associated with COVID-19, and clinical deterioration must be identified early. Several institutions launched remote patient monitoring programs (RPMPs) to care for patients with COVID-19. We describe patients' perspectives on a COVID-19 RPMP at a National Comprehensive Cancer Center. METHODS: Patients who tested positive for COVID-19 were eligible. Enrolled patients received a daily electronic COVID-19 symptom assessment, and a subset of high-risk patients also received a pulse oximeter. Monitoring was provided by a centralized team and was discontinued 14 days after a patient's positive test result and following 3 days without worsening symptoms. Patients who completed at least one assessment and exited the program were sent a patient engagement survey to evaluate the patient's experience with digital monitoring for COVID-19. RESULTS: The survey was distributed to 491 patients, and 257 responded (52% completion rate). The net promoter score was 85%. Most patients agreed that the RPMP was worthwhile, enabled better management of their COVID-19 symptoms, made them feel more connected to their healthcare team, and helped prevent emergency room visits. Identified themes regarding patient-perceived value of a RPMP included (1) security: a clinical safety net; (2) connection: a link to their clinical team during a period of isolation; and (3) empowerment: an education on the virus and symptom management. CONCLUSION: RPMPs are perceived to be of value to oncology patients with COVID-19. Policymakers should consider how these programs can be reimbursed to keep vulnerable patients at home and out of the acute care setting.

Type of Medium: Online Resource

ISSN: 2688-1527 , 2688-1535

URL: Article

DOI: 10.1200/OP.21.00269

Language: English

Publisher: American Society of Clinical Oncology (ASCO)

Publication Date: 2021

detail.hit.zdb_id: 3005549-0

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7

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Sexual and Gender Minority Communication Skills (SGM Comskil) Training for Oncology Clinicians: Development, Implementation, and Preliminary Efficacy

Banerjee, Smita C. ; Staley, Jessica M. ; Alexander, Koshy ; [et al.]

Springer Publishing Company ; 2021

In: Annals of LGBTQ Public and Population Health Vol. 2, No. 1 ( 2021-03-01), p. 35-52

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In: Annals of LGBTQ Public and Population Health, Springer Publishing Company, Vol. 2, No. 1 ( 2021-03-01), p. 35-52

Abstract: Enhancing communicative competence of healthcare providers (HCPs) is a critical initiative for improving the healthcare experience of sexual and gender minority (SGM) cancer patients. This study presents the development, implementation, and preliminary efficacy of a new training curriculum for improving oncology HCPs’ skills in providing a safe and welcoming environment for SGM cancer patients (SGM Comskil training). Thirty-three ( N = 33) oncology HCPs including nurses, nurse leaders, and nurse practitioners participated in a 4.25-hour SGM Comskil Training between July and August 2019. Overall, participants reported highly favorable evaluations of the training, with more than 80% of the participants reacting positively to 12 of the 15 evaluation items assessing engagement and reflectiveness for experiential role-plays with lesbian, gay, bisexual (LGB) and transgender standardized patients (SPs), respectively. Participants also demonstrated significant improvements in SGM healthcare knowledge, self-efficacy, beliefs toward LGB and transgender persons, and SGM-sensitive language use skills following the training. Encouraged by the feasibility of conducting this experiential training with busy cancer care HCPs and the initial favorable participant evaluation of the SGM Comskil training, results clearly indicate that this training can be rolled out into clinical settings to ensure its translational potential. The next steps should assess observable changes in communication skills and SGM-sensitive language skills with SGM patients and improvements in SGM patients’ healthcare experience.

Type of Medium: Online Resource

ISSN: 2688-4518

URL: Article

DOI: 10.1891/LGBTQ-2020-0016

Language: English

Publisher: Springer Publishing Company

Publication Date: 2021

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8

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Knowledge, Beliefs, and Communication Behavior of Oncology Health-care Providers (HCPs) regarding Lesbian, Gay, Bisexual, and Transgender (LGBT) Patient Health care

Banerjee, Smita C ; Walters, Chasity B ; Staley, Jessica M ; [et al.]

Informa UK Limited ; 2018

In: Journal of Health Communication Vol. 23, No. 4 ( 2018-04-03), p. 329-339

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In: Journal of Health Communication, Informa UK Limited, Vol. 23, No. 4 ( 2018-04-03), p. 329-339

Type of Medium: Online Resource

ISSN: 1081-0730 , 1087-0415

URL: Article

DOI: 10.1080/10810730.2018.1443527

Language: English

Publisher: Informa UK Limited

Publication Date: 2018

detail.hit.zdb_id: 1481668-4

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9

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A Video Decision Aid Improves Informed Decision Making in Patients With Advanced Cancer Considering Palliative Radiation Therapy

Dharmarajan, Kavita V. ; Walters, Chasity B. ; Levin, Tomer T. ; [et al.]

Elsevier BV ; 2019

In: Journal of Pain and Symptom Management Vol. 58, No. 6 ( 2019-12), p. 1048-1055.e2

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In: Journal of Pain and Symptom Management, Elsevier BV, Vol. 58, No. 6 ( 2019-12), p. 1048-1055.e2

Type of Medium: Online Resource

ISSN: 0885-3924

URL: Article

DOI: 10.1016/j.jpainsymman.2019.08.014

Language: English

Publisher: Elsevier BV

Publication Date: 2019

detail.hit.zdb_id: 1500639-6

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Palliative and end-of-life care needs, experiences, and preferences of LGBTQ+ individuals with serious illness: A systematic mixed-methods review

Rosa, William E ; Roberts, Kailey E ; Braybrook, Debbie ; [et al.]

SAGE Publications ; 2023

In: Palliative Medicine Vol. 37, No. 4 ( 2023-04), p. 460-474

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In: Palliative Medicine, SAGE Publications, Vol. 37, No. 4 ( 2023-04), p. 460-474

Abstract: Lesbian, gay, bisexual, transgender, and queer/questioning (LGBTQ+) individuals experience discrimination throughout the care continuum, including during serious illness and at end of life. High-quality palliative care requires that health professionals deliver individualized services that reflect the needs, experiences, and preferences of LGBTQ+ persons. Aim: To identify and appraise existing evidence related to the needs, experiences, and preferences for palliative and end of life care among LGBTQ+ individuals with serious illness. Design: Data-based convergent synthesis design reported per the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Data sources: PubMed, Embase, Cochrane CENTRAL, PsycINFO, CINAHL, and Scopus from January 1, 2010 to November 6, 2020. Results: Of 4875 results captured, 69 articles underwent full-text review and 13 were retained for analysis. Most studies were from North America with trans individuals represented in 10 of 13 studies. Needs ( n = 6) included increased social support, institutional safety, economic and legal supports, and advocacy to mitigate health barriers.Experiences ( n = 12) were driven by fear and worry associated with discrimination/stigma,providers’ hetero-/cisnormative assumptions, homophobia and transphobia, social isolation, and an undignified death. Preferences ( n = 6) pertained to inclusion of chosen families in decision-making, disclosure of LGBTQ+ identity based on safety of the clinical environment, and a desire to maintain autonomy. Conclusions: The robustness of the science has improved regarding the needs, experiences, and preferences of trans individuals. Actionable, inclusive policies coupled with sustained and integrated cultural sensitivity training for health workers are mandatory. Interventional research is critical to enhance tailored palliative care for LGBTQ+ people and their chosen families.

Type of Medium: Online Resource

ISSN: 0269-2163 , 1477-030X

URL: Article

DOI: 10.1177/02692163221124426

Language: English

Publisher: SAGE Publications

Publication Date: 2023

detail.hit.zdb_id: 2027566-3

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Kooperativer Bibliotheksverbund

Berlin Brandenburg