Format:
Online-Ressource (XIV, 232p, digital)
ISBN:
9783642236990
,
1283934817
,
9781283934817
Series Statement:
SpringerLink
Content:
Paula Boddington
Content:
New developments in science and technology have resulted in shifting ethical challenges in many areas including in genomics research. This book enables those who are involved in genomics research, whether as researcher, participant or policy maker, to understand the ethical issues currently developing in this field and to participate actively in these important debates. A clear account is given of how science and technology are outstripping the capacity of previous ethical regulations to cope with current issues, together with practical illustrations of possible ways forward. Key ethical ideas are presented, drawing on the history of research regulation and on an account of the particular challenges arising in the field of genomics. The book uses a grounded, practical approach to explaining ethical concepts and issues which is geared to enhancing interdisciplinary dialogue. Its broad approach to ethical issues includes relevant considerations from social psychology and there is a particular emphasis on understanding the problems of ethical regulations and practice in the institutional and social context of research. A glossary and numerous text boxes explaining relevant terms and key ideas help to make the work an invaluable resource for both beginners and experts in the field.
Note:
Description based upon print version of record
,
Ethical Challenges in Genomics Research; Acknowledgements; Contents; Chapter 1: The ``Ethics Job´´; 1.1 The Role of the ``In-house´´ Ethicist and How This Book Came About; 1.2 Research in Genomics; 1.2.1 Genetics and Genomics; 1.2.2 A Genomics Research Project: The Procardis Consortium; 1.2.3 Varieties of Genomics Research; 1.3 Ethical Debate in Genomics; 1.4 Putting Philosophy to Work in Ethics and Genomics; 1.4.1 Careful Attention to Steps in Arguments; 1.4.2 Matching up Theory with Experience; 1.4.3 Developing Moral Thought; 1.5 Conclusions; 1.6 Study Questions; 1.7 Coming Up Next
,
ReferencesChapter 2: Why Research Ethics? Why Ethics in Genetics? The Case of Genomics Research; 2.1 A Brief History of the Ethical Regulation of Research; 2.2 An Equally Brief History of Ethical Issues in Genetics; 2.2.1 Worries About Eugenics; 2.2.2 Genetics and Populations: The Spectre of ``Race´´; 2.2.3 Genetics and Reproduction; 2.2.4 Genetics, Life, and Identity; 2.3 Meet ELSI; 2.4 Too Much Ethics?; 2.5 Human Subjects and Subjects of Research; 2.6 Lessons from Research Abuses and Open Debate; 2.7 Researchers Facing Ethical Issues: Accounts from the Front Line
,
2.7.1 Researchers Behaving Well: Detective Work Amongst the Mormons2.7.2 Researchers Behaving Well: Warning the NIH About Privacy Risks; 2.7.3 Researchers Behaving Well: What Watson Didn´t Want to Know; 2.8 Epilogue: What Can We Learn from Good Behaviour?; 2.9 Conclusions; 2.10 Study Questions; 2.11 Coming Up Next; References; Chapter 3: What Ethics Is, What It Is Not, and How We Are Going to Proceed; 3.1 What Ethics Is Not: Clearing Away Confusion; 3.1.1 The Business of Research Ethics Committees; 3.1.1.1 RECs as Advocates for the Subjects of Research
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3.1.1.2 Ethics Draws on a Wider Range of Issues than Do Many RECs3.1.1.3 RECs, Rules, and Ethics; 3.1.1.4 RECs as ``Hurdles´´; 3.1.1.5 A Note on Ethical ``Clearance´´ by RECs; 3.1.1.6 Ethics and RECs: A Summary; 3.1.2 ELSI and Ethics; 3.1.3 Ethics Aims to Improve Standards .?; 3.1.4 A Note About the Practical Goals of Ethics; 3.2 What Ethics Is; 3.2.1 Universal Ethics or Relativistic Ethics?; 3.2.2 Thinking Right and Doing Right: Moral Motivation; 3.2.3 What Can We Hope for in Ethics?; 3.2.4 Ethics and Other Values: The Value of Knowledge and the Value of Scientific Progress
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3.2.5 The Case of the ``Missing Ethics´´3.2.6 Reasoning in Ethics: A Very Brief Summary; 3.2.7 Empirical Work in Ethics; 3.3 Conclusions; 3.4 Study Questions; 3.5 Coming Up Next; References; Chapter 4: Starting Analysis in Ethics: A Practical Guide; 4.1 Introduction: How to Use This Chapter; 4.2 Critical Reading in Ethics: Some Strategies; 4.3 Reading an Article on Ethics: Some Preliminaries; 4.3.1 What Journal?; 4.3.2 The Range of Work in Ethics; 4.3.3 Authors and Authority; 4.3.4 Authors´ Disciplinary Backgrounds and Affiliations; 4.4 Some Basic Questions to Ask as You Are Reading
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4.4.1 Where in the Text Can You Find Arguments and Evidence for Positions?
Additional Edition:
ISBN 9783642236983
Additional Edition:
Buchausg. u.d.T. Boddington, Paula Ethical challenges in genomics research Heidelberg [u.a.] : Springer, 2012 ISBN 9783642236983
Additional Edition:
ISBN 3642236987
Language:
English
Subjects:
Biology
,
Philosophy
Keywords:
Humangenom-Projekt
;
Philosophische Anthropologie
;
Bioethik
;
Humangenom-Projekt
;
Philosophische Anthropologie
;
Bioethik
DOI:
10.1007/978-3-642-23699-0
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