Format:
1 Online-Ressource (242 Seiten)
ISBN:
9781351605359
Content:
Cover -- Title -- Copyright -- TABLE OF CONTENTS -- List of tables -- Notes on contributors -- Preface and acknowledgements -- 1 Ethics in participatory research -- 2 Partnership, collaboration and power -- Part 1 Introduction and overview of the issues -- Part 2 Cases and commentaries -- Case 2.1 Power inequities and ethical challenges in action research at public nursing homes in Denmark -- Commentary on Case 2.1 -- Case 2.2 Participatory research with adults with Asperger's syndrome in the UK -- Commentary on Case 2.2 -- Case 2.3 Researching gender-based violence in Rwanda: What do we really mean by 'building' local research capacity? -- Commentary on Case 2.3 -- Case 2.4 Starting as you mean to go on: Including young people in a participatory research project in the UK -- Commentary on Case 2.4 -- Part 3 Concluding comments -- 3 Blurring the boundaries between researcher and researched, academic and activist -- Part 1 Introduction and overview of the issues -- Part 2 Cases and commentaries -- Case 3.1 Following research protocols versus being sensitive to informants' feelings: Ethical issues for a community researcher in Southern Africa -- Commentary on Case 3.1 -- Case 3.2 Are you telling me this as a researcher or a friend? Ethical issues for a UK doctoral researcher -- Commentary on Case 3.2 -- Case 3.3 The power and dilemmas of 'in between' and off-the-record: Participatory research with people with intellectual disabilities in The Netherlands -- Commentary on Case 3.3 -- Case 3.4 When research becomes a therapeutic intervention: Using PhotoVoice in an Irish hospital -- Commentary on Case 3.4 -- Part 3 Concluding comments -- 4 Community rights, conflict and democratic representation -- Part 1 Introduction and overview of the issues -- Part 2 Cases and commentaries
Content:
Case 4.1 Doing research, advocating for human rights, and preserving community relations amongst migrant workers in Canada: A silence that (still) bothers -- Commentary on Case 4.1 -- Case 4.2 Whose voice is included and whose should be loudest? Negotiating value systems with respect to leadership and membership in rural Zambia -- Commentary on Case 4.2 -- Case 4.3 Suicide and well-being: A participatory study with Inuit in Arctic Canada -- Commentary on Case 4.3 -- Case 4.4 Working with community conflict and ethnic tensions in a 'socially excluded locality' in the Czech Republic -- Commentary on Case 4.4 -- Part 3 Concluding comments -- 5 Co-ownership, dissemination and impact -- Part 1 Introduction and overview of the issues -- Part 2 Cases and commentaries -- Case 5.1 Disagreements about ownership of data and use of findings: Ethical issues in community-based health research in Tanzania -- Commentary on Case 5.1 -- Case 5.2 Decolonizing research through documentary film? Indigenous environmental justice and community-engagement in Canada -- Commentary on Case 5.2 -- Case 5.3 Two realities meeting one another: Young service users and policy-makers in Finland -- Commentary on Case 5.3 -- Case 5.4 About the 'co' in co-writing: Challenges for a Dutch university researcher co-researching with people with intellectual disabilities -- Commentary on Case 5.4 -- Part 3 Concluding comments -- 6 Anonymity, privacy and confidentiality -- Part 1 Introduction and overview of the issues -- Part 2 Cases and commentaries -- Case 6.1 Handling a privacy breach and participant notification: Challenges for a community-based research project with people who use drugs in Ottawa -- Commentary on Case 6.1 -- Case 6.2 Issues of confidentiality in working between research and clinical care: Community-based research in an HIV hospital in Toronto, Canada
Content:
Commentary on Case 6.2 -- Case 6.3 Tensions between confidentiality and equitable recognition of co-researchers: Participatory health research in a Swazi village -- Commentary on Case 6.3 -- Case 6.4 Could we protect confidentiality, and for whom? Story from a PhotoVoice project with teenagers living with Autism Spectrum Disorder in Hanoi, Vietnam -- Commentary on Case 6.4 -- Part 3 Concluding comments -- 7 Institutional ethical review processes -- Part 1 Introduction and overview of the issues -- Part 2 Cases and commentaries -- Case 7.1 Approving a participatory research proposal: Perspectives from a Research Ethics Committee Chair and a researcher in Ireland -- Commentary on Case 7.1 -- Case 7.2 The question of parental consent for teenagers in a doctoral research project in the UK -- Commentary on Case 7.2 -- Case 7.3 Responding to concerns about participant burden and vulnerability in health-related action research in Ireland -- Commentary on Case 7.3 -- Case 7.4 Dilemmas in a UK PAR project involving mental health service users and providers -- Commentary on Case 7.4 -- Part 3 Concluding comments -- 8 Social action for social change -- Part 1 Introduction and overview of the issues -- Part 2 Cases and commentaries -- Case 8.1 Striving for social change through participatory research: Challenges in working in a multi-ethnic neighbourhood in The Netherlands -- Commentary on Case 8.1 -- Case 8.2 Shaking things up: Participatory research with women with disabilities in the Philippines -- Commentary on Case 8.2 -- Case 8.3 Research for social change: Developing understandings of conflicts between conservation and rural livelihoods in Kosi Bay, South Africa -- Commentary on Case 8.3 -- Case 8.4 Researching community-led responses to family violence in Australia: Whose vision of socially just change? -- Commentary on Case 8.4
Content:
Part 3 Concluding comments -- Index
Additional Edition:
ISBN 9781138093430
Additional Edition:
Print version Banks, Sarah Ethics in Participatory Research for Health and Social Well-Being : Cases and Commentaries Milton : Routledge,c2018 ISBN 9781138093430
Language:
English
URL:
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