Kooperativer Bibliotheksverbund

UID:

Format: 1 online resource (x, 291 pages) : , digital, PDF file(s).

ISBN: 1-108-85801-5 , 1-108-87796-6 , 1-108-87410-X

Content: For the average person, genetic testing has two very different faces. The rise of genetic testing is often promoted as the democratization of genetics by enabling individuals to gain insights into their unique makeup. At the same time, many have raised concerns that genetic testing and sequencing reveal intensely personal and private information. As these technologies become increasingly available as consumer products, the ethical, legal, and regulatory challenges presented by genomics are ever looming. Assembling multidisciplinary experts, this volume evaluates the different models used to deliver consumer genetics and considers a number of key questions: How should we mediate privacy and other ethical concerns around genetic databases? Does aggregating data from genetic testing turn people into products by commercializing their data? How might this data reduce or exacerbate existing healthcare disparities? Contributing authors also provide guidance on protecting consumer privacy and safety while promoting innovation.

Note: Title from publisher's bibliographic system (viewed on 27 Aug 2021). , Liability implications of direct-to-consumer genetic testing / Gary E. Marchant, Mark Barnes, Ellen W. Clayton, and Susan M. Wolf -- Consuming genetics as a life insurance consumer / Anya E. R. Prince -- In favor of an action for genetic conversion / Jessica L. Roberts -- Direct-to-consumer genomics and personal health data / Jorge L. Contreras -- Governance in the era of CRISPR and DIY-Bio regulatory guidance of human genome editing at the national and global levels / Scott J. Schweikart -- Noninvasive prenatal genome sequencing ethical and policy post-birth implications / Vardit Ravitsky -- The myth of "anonymous" gamete donation in the age of direct-to-consumer genetic testing / Seema Mohapatra -- Improving commercial genetic data-sharing policy / Kayte Spector-Bagdady -- Genetic paparazzi / Yaniv Heled and Liza Vertinsky -- Programming our genomes, programming ourselves : the moral and regulatory challenge of regulating do-it-yourself gene editing / Barbara J. Evans -- Governing nontraditional gene editing / Maxwell J. Mehlman and Ronald A. Conlon -- Finding a regulatory balance for genetic biohacking / Patricia J. Zettler, Christi J. Guerrini, and Jacob S. Sherkow -- Generational failures of law and ethics : rape, Mormon orthodoxy, and the revelatory power of ancestry DNA / Kif Augustine-Adams -- Precision medicine and the resurgence of race in genomic medicine / Jonathan Kahn -- Losing our minds? direct-to-consumer genetic testing and Alzheimer's disease / Emily Largent -- Investigative genetic genealogy and the problem of familial forensic identification / Natalie Ram -- An ethical framework for genetic counseling in the genomic era / Leila Jamal, Will Schupmann, and Benjamin E. Berkman -- Physician-mediated elective whole genome sequencing tests : impacts on informed consent / Emily Qian, Magalie Leduc, Rebecca Hodges, Bryan Cosca, Ryan Durigan, Laurie McCright, Doug Flood, and Birgit Funke -- Privacy best practices for direct-to-consumer genetic testing services : are industry efforts at self-regulation sufficient? / James W. Hazel -- Regulatory and medical aspects of direct-to-consumer genetic testing / Catherine M. Sharkey, Xiaohan Wu, Michael F. Walsh, and Kenneth Offit.

Additional Edition: ISBN 1-108-83661-5

Language: English

URL: lizenzpflichtig

URL: https://doi.org/10.1017/9781108874106

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Format: 1 Online-Ressource (xiii, 380 Seiten).

ISBN: 978-0-262-36356-3

Note: Bevorzugte Informationsquelle: Landingpage (The MIT Press Direct), da weder Titelblatt noch Impressum vorhanden

Additional Edition: Erscheint auch als Druck-Ausgabe, Hardcover ISBN 978-0-262-04443-1

Additional Edition: Erscheint auch als Druck-Ausgabe, Paperback ISBN 978-0-262-54388-0

Language: English

Subjects: Biology

Keywords: CRISPR/Cas-Methode ; Genome Editing ; Mensch

DOI: 10.7551/mitpress/13492.001.0001

URL: Volltext  (URL des Erstveröffentlichers)

URL: Volltext  (URL des Erstveröffentlichers)

URL: Volltext  (URL des Erstveröffentlichers)

URL: Volltext  (URL des Erstveröffentlichers)

URL: Volltext  (URL des Erstveröffentlichers)

URL: Volltext  (URL des Erstveröffentlichers)

UID:

ISBN: 9780230621923

In: Medicine after the Holocaust, (2010), S. 185-200, 9780230621923

Language: English

UID:

Format: 1 online resource (281 pages)

ISBN: 9780804791083 (e-book)

Note: Includes index.

Additional Edition: Print version: Barton, John H. International law and the future of freedom. Stanford, California : Stanford Law Books, c2014 ISBN 9780804776691

Language: English

Keywords: Electronic books.

URL: Click to View

UID:

Format: 1 online resource (392 p.)

ISBN: 0-674-54575-3

Content: Within 40 years many people will stop having sex for reproduction. After IVF and preimplantation genetic diagnosis, parents will pick embryos for implantation, gestation, and birth. It will be easy, safe, lawful, and free, Henry Greely predicts. He explains the new technologies and sets out the deep ethical and legal challenges facing humanity.

Note: Includes index. , Frontmatter -- , Contents -- , Introduction: Changes -- , 1. Cells, Chromosomes, DNA, Genomes, and Genes -- , 2. Reproduction: In General and in Humans -- , 3. Infertility and Assisted Reproduction -- , 4. Genetics -- , 5. Genetic Testing -- , 6. Stem Cells -- , First Interlude–Easy PGD: The Possibilities -- , 7. Genetic Analysis -- , 8. Making Gametes -- , 9. Research Investment, Industry, Medical Professionals, and Health Care Financing -- , 10. Legal Factors -- , 11. Politics -- , 12. Some Other Possible Uses of New Technologies in Reproduction -- , Second Interlude–Easy PGD: The Future -- , 13. Safety -- , 14. Family Relationships -- , 15. Fairness, Justice, and Equality -- , 16. Coercion -- , 17. Just Plain Wrong -- , 18. Enforcement and Implementation -- , Conclusion: Choices -- , Notes -- , Glossary -- , Acknowledgments -- , Index , English

Additional Edition: ISBN 0-674-72896-3

Language: English

DOI: 10.4159/9780674545755

UID:

Format: 1 online resource

ISBN: 9780674545755

Content: Within 40 years many people will stop having sex for reproduction. After IVF and preimplantation genetic diagnosis, parents will pick embryos for implantation, gestation, and birth. It will be easy, safe, lawful, and free, Henry Greely predicts. He explains the new technologies and sets out the deep ethical and legal challenges facing humanity.

Note: Frontmatter -- , Contents -- , Introduction: Changes -- , Part I. The Science -- , 1. Cells, Chromosomes, DNA, Genomes, and Genes -- , 2. Reproduction: In General and in Humans -- , 3. Infertility and Assisted Reproduction -- , 4. Genetics -- , 5. Genetic Testing -- , 6. Stem Cells -- , First Interlude–Easy PGD: The Possibilities -- , Part II. The Pathway -- , 7. Genetic Analysis -- , 8. Making Gametes -- , 9. Research Investment, Industry, Medical Professionals, and Health Care Financing -- , 10. Legal Factors -- , 11. Politics -- , 12. Some Other Possible Uses of New Technologies in Reproduction -- , Second Interlude–Easy PGD: The Future -- , Part III. The Implications -- , 13. Safety -- , 14. Family Relationships -- , 15. Fairness, Justice, and Equality -- , 16. Coercion -- , 17. Just Plain Wrong -- , 18. Enforcement and Implementation -- , Conclusion: Choices -- , Notes -- , Glossary -- , Acknowledgments -- , Index , In English.

Additional Edition: ISBN 9780674728967

Language: English

DOI: 10.4159/9780674545755

URL: https://doi.org/10.4159/9780674545755

URL: https://doi.org/10.4159/9780674545755

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Format: 1 online resource (xii, 266 pages)

ISBN: 0-8047-9108-2

Content: International Law and The Future of Freedom is the late John Barton's exploration into ways to protect our freedoms in the new global international order. This book forges a unique approach to the problem of democracy deficit in the international legal system as a whole—looking at how international law concretely affects actual governance. The book draws from the author's unparalleled mastery of international trade, technology, and financial law, as well as from a wide array of other legal issues, from espionage law, to international criminal law, to human rights law. The book defines the new and changing needs to assert our freedoms and the appropriate international scopes of our freedoms in the context of the three central issues that our global system must resolve: the balance between security and freedom, the balance between economic equity and opportunity, and the balance between community and religious freedom. Barton explores the institutional ways in which those rights can be protected, using a globalized version of the traditional balance of powers division into the global executive, the global legislature, and the global judiciary.

Note: Includes index. , Front matter -- , Contents -- , Foreword -- , Preface -- , Introduction -- , 1. Prolegomenon -- , 2. Security and Freedom -- , 3. Economy and Equality -- , 4. The Intangibles of Governance -- , 5. The International Executive -- , 6. The International Legislature -- , 7. The International Judiciary -- , 8. Where to Begin? -- , Notes -- , Index , English

Additional Edition: ISBN 0-8047-7669-5

Language: English

DOI: 10.1515/9780804791083