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  • 1
    Online Resource
    Online Resource
    Handbuch Ethik und Recht der Forschung am Menschen / (2014)
    Berlin [u.a.] :Springer,
    Details
    UID:
    almafu_BV042185885
    Format: 1 Online-Ressource (XXVIII, 675 S.).
    ISBN: 978-3-642-35099-3
    Additional Edition: Erscheint auch als Druck-Ausgabe, Hardcover ISBN 978-3-642-35098-6
    Language: German
    Subjects: Law , Medicine , Philosophy
    RVK:
    PJ 2280
    RVK:
    CC 7264
    RVK:
    XC 2800
    Keywords: Mensch ; Forschung ; Medizinische Ethik ; Recht ; Aufsatzsammlung ; Aufsatzsammlung ; Aufsatzsammlung
    DOI: 10.1007/978-3-642-35099-3
    URL: Volltext
    URL: Inhaltsverzeichnis
    URL: Abstract
    URL: lizenzpflichtig
    URL: Volltext
    URL: Inhaltsverzeichnis
    URL: Cover
    URL: Volltext
    URL: Inhaltsverzeichnis
    URL: Abstract
    URL: http://dx.doi.org/10.1007/978-3-642-35099-3
    Author information: Lenk, Christian 1971-2022
    Library Location Call Number Volume/Issue/Year Availability
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    Online Resource
    Online Access
    Open Access Request
    HU Berlin
    FU Berlin
    HWR Berlin
    UB Potsdam
    HTW Berlin
    FH Potsdam
    TH Wildau
    Charité
    BTU Cottbus
    TU Berlin
    Alice Salomon HS
  • 2
    Online Resource
    Online Resource
    Handbuch Ethik und Recht der Forschung am Menschen / (2014)
    Berlin [u.a.] :Springer,
    Details
    UID:
    edoccha_BV042185885
    Format: 1 Online-Ressource (XXVIII, 675 S.).
    ISBN: 978-3-642-35099-3
    Additional Edition: Erscheint auch als Druck-Ausgabe, Hardcover ISBN 978-3-642-35098-6
    Language: German
    Subjects: Law , Medicine , Philosophy
    RVK:
    PJ 2280
    RVK:
    CC 7264
    RVK:
    XC 2800
    Keywords: Mensch ; Forschung ; Medizinische Ethik ; Recht ; Aufsatzsammlung
    DOI: 10.1007/978-3-642-35099-3
    URL: Volltext
    URL: Inhaltsverzeichnis
    URL: Abstract
    Author information: Lenk, Christian 1971-2022
    Library Location Call Number Volume/Issue/Year Availability
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    Online Resource
    Online Access
    Open Access Request
    FU Berlin
    HWR Berlin
    HTW Berlin
    FH Potsdam
    TH Wildau
    Charité
    BTU Cottbus
    TU Berlin
    Alice Salomon HS
  • 3
    Online Resource
    Online Resource
    Handbuch Ethik und Recht der Forschung am Menschen / (2014)
    Berlin [u.a.] :Springer,
    Details
    UID:
    edocfu_BV042185885
    Format: 1 Online-Ressource (XXVIII, 675 S.).
    ISBN: 978-3-642-35099-3
    Additional Edition: Erscheint auch als Druck-Ausgabe, Hardcover ISBN 978-3-642-35098-6
    Language: German
    Subjects: Law , Medicine , Philosophy
    RVK:
    PJ 2280
    RVK:
    CC 7264
    RVK:
    XC 2800
    Keywords: Mensch ; Forschung ; Medizinische Ethik ; Recht ; Aufsatzsammlung
    DOI: 10.1007/978-3-642-35099-3
    URL: Volltext
    URL: Inhaltsverzeichnis
    URL: Abstract
    Author information: Lenk, Christian 1971-2022
    Library Location Call Number Volume/Issue/Year Availability
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    Online Resource
    Online Access
    Open Access Request
    FU Berlin
    HWR Berlin
    HTW Berlin
    FH Potsdam
    TH Wildau
    BTU Cottbus
    TU Berlin
    Alice Salomon HS
  • 4
    Online Resource
    Online Resource
    Das sogenannte Recht auf Nichtwissen : Normatives Fundament und anwendungspraktische Geltungskraft (2019)
    Paderborn :mentis Verlag,
    Details
    UID:
    almahu_9949702539802882
    Format: 1 online resource.
    ISBN: 9783957437792
    Series Statement: Schöningh, Fink and mentis Religious Studies, Theology and Philosophy E-Books Online, Collection 2019, ISBN: 9783657100170
    Content: Spätestens mit Inkrafttreten des Gendiagnostikgesetzes wird in Recht, Ethik und Genetik verstärkt diskutiert, wie das dort dem Grunde nach anerkannte "Recht auf Nichtwissen" in den jeweiligen konkreten Anwendungskontexten rechtspraktisch operationalisiert werden kann. Vor diesem Hintergrund etablierte sich eine vom BMBF geförderte Göttinger Projektgruppe (2013-2015), die sich aus renommierten Vertretern der Fachdisziplinen Ethik, Humangenetik, Genetischer Psychiatrie und Recht zusammensetzte. Ihr Ziel war es, unter besonderem Fokus auf die aktuellen bzw. absehbaren technologischen Entwicklungen der modernen Gensequenzierung den zentralen Wertekonflikt im Spannungsfeld von "Autonomie" und "ärztlicher Fürsorge" interdisziplinär und systematisch unter anderem auf Grundlage einer begleitenden Fragebogenstudie zu analysieren. Dieser Band bündelt die wesentlichen Erkenntnisse der einzelnen Forschungsdisziplinen; zudem beziehen weitere namhafte Experten zu den Ergebnissen und aktuellen Entwicklungen vertiefend Stellung.BR/〉
    Note: Preliminary Material / , Vorwort / , Zur Sinnhaftigkeit des Nichtwissens und seiner normativen Absicherung / , Was ist Nichtwissen? / , Ethische und soziologische Aspekte des Rechtes auf Nichtwissen / , Foundations and implications of the right not to know / , Das Recht auf Nichtwissen / , Das Recht auf Nichtwissen im Kontext prädiktiver Medizin / , Gibt es eine Pflicht, seine Gene zu kennen? / , Zur Methodik der empirischen Begleitstudie / , Normative Schlussfolgerungen aus humangenetischer Perspektive / , Normative Schlussfolgerungen aus ethischer Perspektive / , Normative Schlussfolgerungen aus der Perspektive des Recht / , Nichtwissen in der klinischen Praxis / , Zum Noceboeffekt in Krankenbehandlung und Probanden-Experimen / , Zum professionellen Umgang mit Nichtwissen im Krankenhaus / , Die letzte Rettung? / , Empfehlungen zum anwendungspraktischen Umgang mit dem »Recht auf Nichtwissen« / , Autorenverzeichnis /
    Additional Edition: Print version: Das sogenannte Recht auf Nichtwissen: Normatives Fundament und anwendungspraktische Geltungskraft Paderborn : mentis Verlag, 2019, ISBN 9783957431349
    Language: German
    Subjects: Law
    RVK:
    PJ 2280
    Keywords: Aufsatzsammlung
    URL: DOI:
    URL: Volltext  (URL des Erstveröffentlichers)
    URL: Volltext
    URL: Volltext
    URL: DOI
    URL: Inhaltsverzeichnis
    URL: Inhaltstext
    URL: lizenzpflichtig
    URL: Inhaltstext
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    Stabi Berlin
    HU Berlin
    UB Potsdam
    Alice Salomon HS
  • 5
    Online Resource
    Online Resource
    Evidence-based Practice in Medicine and Health Care : A Discussion of the Ethical Issues (2005)
    Berlin, Heidelberg : Springer-Verlag Berlin Heidelberg
    Details
    UID:
    gbv_1647314968
    Format: Online-Ressource (VI, 184 p. 16 illus, digital)
    ISBN: 9783540271338
    Series Statement: SpringerLink
    Content: "Evidence-based Medicine (EBM) is feared to become a kind of cook-book medicine that has nothing to do with the traditional skills and ethics. This volume shows the contribution EBM makes and might make to medical practice and health policy. It describes as many viewpoints as possible with a focus on the ethical issues that are at stake in this process. It shows how EBM has developed from an internal medical issue to an instrument for health policy. It is the outcome of the European Project ""Ethical Issues of Evidence Based Practice in Medicine and Health Care"" and gives insight into the ethical background of the debate on the role of EBM in various areas of medicine, including clinical practice, medical education, medical research, health policy and medical sociology."
    Note: Includes bibliographical references and index , Preliminary; The Ethical Debate on Evidence-based Medicine - Introduction to the Volume; Regulating Health Care. The Development of Guidelines in Medical Practice and Health Policy; Evidence-based Medicine and Power Shifts in Health Care Systems; Beyond Legitimate Science: The Case for Policy-Related Science; Teaching Evidence-based Medicine; Evidence-based Medicine and Clinical Guidelines in Cardiology. Promoting Science, Practice, or Bureaucracy?; Are Particular Patients Disadvantaged by EBM? Focus on Frail Elderly Patients , Evidence-based Medicine in Mental Health: Towards Better and Fairer Treatment?Current Epistemological Problems in Evidence-based Medicine; Coordinating the Norms and Values of Medical Research, Medical Practice and Patient Worlds. The Ethics of Evidence-based Medicine in 'Boundary Fields of Medicine'; Research Ethics and Evidence-based Medicine; Clinical Evaluative Research: Which Patients Benefit, How and When? A Contribution to a European Discussion; Defining a Proper Background for Discussing Evidence-based Medicine; Evidence-based Medicine and Equity: The Exclusion of Disadvantaged Groups , The Role of Formal Outcome Evaluations in Health Policy Making: A Normative PerspectiveThe Usefulness of Formal Outcome Evaluations in Health Policy Making: Looking for the Baby in the Bathwater; Evidence-based Medicine and Managed Care; Recommendations from the Evibase Project; Back matter
    Additional Edition: ISBN 9783540222392
    Additional Edition: Buchausg. u.d.T. Evidence-based practice in medicine and health care Berlin : Springer, 2005 ISBN 3540222391
    Language: English
    Subjects: Medicine
    RVK:
    XB 4600
    Keywords: Evidenz-basierte Medizin ; Medizinische Ethik ; Aufsatzsammlung
    DOI: 10.1007/b138662
    URL: Volltext
    URL: Volltext  (lizenzpflichtig)
    URL: Cover
    URL: Inhaltsverzeichnis
    Author information: Lenk, Christian 1971-2022
    Author information: Biller-Andorno, Nikola 1971-
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    Online Access
    Open Access Request
    Stabi Berlin
    UB Potsdam
    MPI Bildungsforschung
  • 6
    Book
    Book
    Handbuch Ethik und Recht der Forschung am Menschen / (2014)
    Heidelberg [u.a.] :Springer,
    Details
    UID:
    almahu_BV040788650
    Format: XXVIII, 675 S.
    ISBN: 3-642-35098-4 , 978-3-642-35098-6
    Additional Edition: Erscheint auch als Online-Ausgabe ISBN 978-3-642-35099-3
    Language: German
    Subjects: Law , Medicine , Philosophy
    RVK:
    CC 7264
    RVK:
    PJ 2280
    RVK:
    XC 2800
    Keywords: Mensch ; Forschung ; Medizinische Ethik ; Recht ; Aufsatzsammlung ; Aufsatzsammlung ; Aufsatzsammlung ; Aufsatzsammlung
    URL: Inhaltstext
    URL: Inhaltsverzeichnis
    URL: Klappentext
    URL: Inhaltsverzeichnis
    URL: Inhaltstext
    URL: Inhaltsverzeichnis
    URL: Cover
    Author information: Lenk, Christian 1971-2022
    Author information: Alt-Epping, Bernd, 1970-
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    Book
    Stabi Berlin get availability status
    HU Berlin get availability status
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  • 7
    Online Resource
    Online Resource
    The ethical and legal regulation of human tissue and biobank research in Europe - Proceedings of the Tiss.EU Project (2011)
    [Erscheinungsort nicht ermittelbar] : Universitätsverlag Göttingen
    Details
    UID:
    gbv_1778718590
    Format: 1 Online-Ressource
    ISBN: 9783863950316
    Content: Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this background, it was one of the aims of the EU-funded Tiss.EU project (“Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union – an Evidence-Based Impact Analysis”) to analyse the ethical and legal regulation of human tissue and biobank research across the 27 European Member States plus Switzerland. The results of nine international workshops and three conferences are gathered in this volume. While the country reports evaluate the implementation of ethical and legal guidelines at a national level, point out their strengths and deficits, and, where required, create an evidence base for the revision of said legislation, the conference reports address more general ethical and legal issues in this field. The volume is completed by a final presentation of project’s results
    Content: Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this background, it was one of the aims of the EU-funded Tiss.EU project (“Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union – an Evidence-Based Impact Analysis”) to analyse the ethical and legal regulation of human tissue and biobank research across the 27 European Member States plus Switzerland. The results of nine international workshops and three conferences are gathered in this volume. While the country reports evaluate the implementation of ethical and legal guidelines at a national level, point out their strengths and deficits, and, where required, create an evidence base for the revision of said legislation, the conference reports address more general ethical and legal issues in this field. The volume is completed by a final presentation of project’s results
    Note: English
    Language: English
    URL: kostenfrei
    Library Location Call Number Volume/Issue/Year Availability
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    Online Resource
    Stabi Berlin
    UB Potsdam
  • 8
    Online Resource
    Online Resource
    The ethical and legal regulation of human tissue and biobank research in Europe : Proceedings of the Tiss.EU Project (2011)
    [Erscheinungsort nicht ermittelbar] : Universitätsverlag Göttingen
    Details
    UID:
    gbv_1778719414
    Format: 1 Online-Ressource
    Content: Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this background, it was one of the aims of the EU-funded Tiss.EU project (“Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union – an Evidence-Based Impact Analysis”) to analyse the ethical and legal regulation of human tissue and biobank research across the 27 European Member States plus Switzerland. The results of nine international workshops and three conferences are gathered in this volume. While the country reports evaluate the implementation of ethical and legal guidelines at a national level, point out their strengths and deficits, and, where required, create an evidence base for the revision of said legislation, the conference reports address more general ethical and legal issues in this field. The volume is completed by a final presentation of project’s results
    Note: English
    Language: English
    URL: kostenfrei
    Library Location Call Number Volume/Issue/Year Availability
    BibTip Others were also interested in ...
    Online Resource
    Stabi Berlin
    UB Potsdam
  • 9
    Book
    Book
    Ethics and law of intellectual property : current problems in politics, science and technology (2007)
    Aldershot, Hampshire [u.a.] : Ashgate
    Details
    UID:
    gbv_537925805
    Format: XII, 292 S , 25 cm
    ISBN: 0754626989 , 9780754626985
    Series Statement: Applied legal philosophy
    Note: Includes bibliographical references and index , Formerly CIP , Hier auch später erschienene, unveränderte Nachdrucke
    Language: English
    Keywords: Geistiges Eigentum ; Bioethik ; Recht
    Author information: Lenk, Christian 1971-2022
    Author information: Andorno, Roberto 1961-
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  • 10
    Online Resource
    Online Resource
    The ethical and legal regulation of human tissue and biobank research in Europe : proceedings of the Tiss.EU project (2011)
    Göttingen :Universitätsverlag Göttingen,
    Details
    UID:
    almahu_9947382038402882
    Format: 1 online resource (183 pages) : , illustrations.
    Series Statement: Open Access e-Books
    Content: Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this background, it was one of the aims of the EU-funded Tiss. EU project ("Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union - an Evidence-Based Impact Analysis") to analyse the ethical and legal regulation of human tissue and biobank research across the 27 European Member States plus Switzerland. The results of nine international workshops and three conferences are gathered in this volume. While the country reports evaluate the implementation of ethical and legal guidelines at a national level, point out their strengths and deficits, and, where required, create an evidence base for the revision of said legislation, the conference reports address more general ethical and legal issues in this field. The volume is completed by a final presentation of project's results.
    Note: "Proceedings of the Tiss. EU Project" , Introduction -- Ethical and legal aspects of research with human tissue in Europe (First International Conference, Göttingen) / Katharina Beier -- Rights and entitlements in human tissue and cells (First International Workshop, Hannover) / Katharina Beier -- Anonymisation and pseudonymisation as means of privacy protection (Second International Workshop, Budapest) / Petra Bárd and Judit Sándor -- Biobanks for research purposes (Third International Workshop, Paris) / Christine Noiville, Florence Bellivier and Virginie Commin -- Privacy, confidentiality and personality rights in biobanking and genetic research with human tissue (Second International Conference, Göttingen) / Katharina Beier -- Procurement, storage and transfer of tissues and cells for non-clinical purposes in a legal and ethical perspective (Fourth International Workshop, Padova) / Alessandra Bernardi, Luciana Caenazzo and Renzo Pegoraro -- Rights and entitlements in human tissue and cells: the BENELUX countries (Fifth International Workshop, Leiden) / Jasper A. Bovenberg -- Anonymisation and pseudonymisation as means of privacy protection (Sixth International Workshop, Stockholm) / Claudio Tamburrini -- The transfer, storage and procurement of human cells and tissues (Seventh International Workshop, Dublin) / Elizabeth Yuko and Bert Gordijn -- Biobanking: ethics, governance and regulation (Eighth International Workshop, Birmingham) / Sean Cordell -- Procurement, storage and transfer of tissues and cells for non-clinical research purposes (Ninth International Workshop, Vilnius) / Vilius Dranseika, Eugenijus Gefenas -- The future of biobanking in Europe: searching for answers to the ethical and legal challenges of human tissue research (Final International Conference, Göttingen) / Katharina Beier, Silvia Schnorrer -- Conclusions / Katharina Beier. , English.
    Additional Edition: ISBN 3-86395-031-3
    Language: English
    DOI: 10.17875/gup2011-386
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    HU Berlin
    FU Berlin
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