Studies in health technology and informatics, 2017, Vol.239, pp.104-111
Consumers are frequently involved in different kinds of health research, such as clinical trials, focus groups, and surveys. As pointed out by different studies, recruiting and involving consumers to participate in academic research can be challenging. While different research and guidelines are provided to instruct researchers to recruit participants ethically, they seldom consider the needs and expectations of consumers. In this research, we interviewed 23 consumers with musculoskeletal conditions in Australia, to understand their needs and motivations for participating in research from a user-centred perspective. Based on these data, we systematically summarise consumers' feedback into four main themes: (1) Research as Learning Opportunity; (2) The Important Role of Communities and Health Professionals; (3) Research Transparency and Updates; and (4) Special Needs for People with MSK Conditions. As a result, a few recommendations are proposed and researchers should further consider these when designing consumer-based studies. Ultimately, with a better understanding of consumers, we hope that our research can enhance consumer engagement and improve their participation in health research.
Engagement ; Consumer Participation ; Musculoskeletal Conditions ; Recruitment ; User-Centred Research ; Motivation ; Musculoskeletal Diseases ; Patient Participation
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