Format:
1 online resource (669 pages)
ISBN:
9789047402930
Content:
Thirty-five papers from the third International DNA Sampling Conference, held in Montreal in September 2002, provide a critical discussion of the socio-ethical and legal issues surrounding DNA sampling in communities and populations around the globe. Contributors address topics related to biobanks and databases; community engagement; confidentialit.
Content:
Intro -- Acknowledgements -- In memoriam -- Prologue -- Contents -- Section 1 - Of Biobanks and Databases -- UK DNA Sample Collections for Research -- Estonian Genome Project - Large Scale Health Status Description and DNA Collection -- Surveying the Population Biobankers -- The Israeli DNA and Cell Line Collection: A Human Diversity Repository -- DNA Data Bank of Japan as an Indispensable Public Database -- A Survey of the Variability of DNA Banks Worldwide -- An Empirical Survey on Biobanking of Human Genetic Material and Data in Six EU Countries -- Mutation Databases and Ethical Considerations -- Section 2 - Of Populations and Communities -- Community Engagement in Genetic Research: The "Slow Code" of Research Ethics? -- Competing Perspectives on Reasons for Participation and Non-Participation in the North Cumbria Community Genetics Project -- The Engagement of Consumers in Genetics Education: Lessons Learned -- Racial Profiling of DNA Samples : Will it Affect Scientific Knowledge About Human Genetic Variation? -- Problematizing the Notion of "Community" in Research Ethics -- On the Intersection of Privacy, Consent, Commerce and Genetics Research -- A Presumed-Consent Model for Regulating Informed Consent of Genetic Research Involving DNA Banking -- Ethical and Legal Issues in Genetic Biobanking -- Do the Ethical Duties of Donor, and Administrators, Depend on Whether the Database is Public or Private? -- Public Attitudes to Participating in UK Biobank : A DNA Bank, Lifestyle and Morbidity Database on 500,000 Members of the UK Public Aged 45-69 -- Section 3 - Of Commerce, Patents and Benefit-Sharing -- Commercial Biobanks and Genetic Research: Banking Without Checks? -- PXE International : Harnessing Intellectual Property Law for Benefit-Sharing -- Advances in Science and Progress of Humanity: A Global Perspective on DNA Sampling.
Note:
Description based on publisher supplied metadata and other sources
Additional Edition:
9789004136786
Additional Edition:
Erscheint auch als Druck-Ausgabe 9789004136786
Language:
English
URL:
https://ebookcentral.proquest.com/lib/kxp/detail.action?docID=253657
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