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Umfang: 1 Online-Ressource

ISBN: 9783031578960

Serie: SpringerBriefs in research and innovation governance

Weitere Ausg.: Erscheint auch als Druck-Ausgabe, Paperback ISBN 978-3-031-57895-3

Sprache: Englisch

DOI: 10.1007/978-3-031-57896-0

URL: Volltext  (kostenfrei)

URL: Volltext  (kostenfrei)

URL: lizenzpflichtig

Mehr zum Autor: Schröder, Doris 1963-

UID:

Umfang: 1 online resource (156 pages)

Ausgabe: 1st ed.

ISBN: 9783031578960

Serie: SpringerBriefs in Research and Innovation Governance Series

Anmerkung: Intro -- Foreword -- Reference -- Acknowledgements -- Contents -- About the Authors -- Abbreviations -- 1 Leaving No One Behind in Research, and the Protection-Inclusion Dilemma for Vulnerable Groups -- 1.1 Introduction -- 1.2 Leaving No One Behind -- 1.2.1 Putting the Most Disadvantaged First -- 1.2.2 Including the Voices of the Most Disadvantaged -- 1.3 Leaving No One Behind in Research -- 1.3.1 Research Focus -- 1.3.2 Research Positions -- 1.3.3 Involving Communities and Participants in Research -- 1.3.4 Involving Pregnant Women in Research -- 1.3.5 Research Benefits -- 1.4 The Protection-Inclusion Dilemma in Research -- 1.4.1 The Most Disadvantaged First in Research? -- 1.5 Voices of the Most Disadvantaged Heard? -- References -- 2 The Exclusion of Vulnerable Populations from Research -- 2.1 Introduction -- 2.2 The Regulation and Governance of Research -- 2.3 Research Ethics Approval Systems and Vulnerability -- 2.3.1 Investigating the Experiences and Perspectives of Researchers Who Work with Vulnerable Populations -- 2.4 Vulnerability and Research Ethics Codes and Guidelines -- 2.4.1 Who is Vulnerable? -- 2.4.2 To What Are They Vulnerable? -- 2.4.3 How Should Vulnerability Be Addressed in Research? -- 2.5 Promoting the Ethical Inclusion of Vulnerable People in Research -- References -- 3 What Does "Vulnerability" Mean? San Representatives Define Vulnerability for Themselves -- 3.1 Introduction -- 3.2 The South African San Community -- 3.3 What is Vulnerability as Defined by the San Themselves? The Workshops -- 3.4 What is Vulnerability as Defined by the San Themselves? The Surveys -- 3.4.1 Theme 1: Understandings of Vulnerability -- 3.4.2 Theme 2: Circumstances in Which Respondents Felt Vulnerable, or Observed Others to Be Vulnerable -- 3.4.3 Theme 3: From the Individual to the Collective: Perceptions of the San's Vulnerability as a Group. , 3.5 Conclusion -- References -- 4 Vulnerability Among the Nairobi Sex Workers, and Undertaking Community-Led Research Without Collecting Personal Data -- 4.1 Introduction -- 4.1.1 Stigma -- 4.1.2 Violence -- 4.1.3 Poverty -- 4.1.4 Access to Health Services -- 4.1.5 Mental Health -- 4.2 The Nairobi Sex Workers and the Ten Sex Worker Clinics -- 4.3 What Is Vulnerability as Defined by the Sex Workers Themselves? A Community-Led Consultation Exercise -- 4.3.1 Creating a Safe Space -- 4.3.2 Community Consultation Stage 1: HIV Infection-A Major Vulnerability -- 4.3.3 Community Consultation Stage 2: Living with Structural Violence -- 4.3.4 Community Consultation Stage 3: Thinking About Vulnerability -- 4.3.5 Community Consultation Stage 4: What Does Vulnerability Mean to You? -- 4.4 What Vulnerability Means to the Nairobi Sex Workers -- 4.5 Conclusion -- References -- 5 Engaged Research: Strengthening Research Teams Through Community Researchers -- 5.1 Introduction -- 5.2 Community Researchers -- 5.3 Benefits of Involving Community Researchers in Research -- 5.4 Challenges of Involving Community Researchers in Research -- 5.4.1 The Researcher Perspective -- 5.4.2 The Community Researcher Perspective -- 5.5 Case Study Involving San Community Researchers -- 5.5.1 Overview of Case Study -- 5.5.2 Existing Relationships of Trust Built on Fairness, Respect, Care and Honesty -- 5.5.3 Recruitment of Community Researchers -- 5.5.4 Training of Community Researchers -- 5.5.5 Implementation -- 5.5.6 Benefits and Challenges for Community Researchers -- 5.5.7 Benefits and Challenges from a Research Perspective -- 5.6 Conclusion -- References -- 6 Vulnerability and Leaving No One Behind in Research: The Recommendations -- 6.1 Introduction -- 6.2 Protection Through Exclusion Leaves Vulnerable Groups Behind in Research -- 6.3 Vulnerability Lost in Translation?. , 6.3.1 Vulnerability Does Not Require an Agent Who Brings About Hardship -- 6.3.2 Vulnerability Versus Stigmatisation, Discrimination, Marginalisation and Abuse -- 6.4 Enthusiasm for Research -- 6.4.1 Long-Term Relationships of Trust -- 6.4.2 Prioritising Research Participant Needs over Researcher Needs -- 6.5 Conclusion -- References -- Appendix: 41 Reasons for HIV Increase -- Index.

Weitere Ausg.: Print version: Schroeder, Doris Vulnerability Revisited Cham : Springer,c2024 ISBN 9783031578953

Sprache: Englisch

Schlagwort(e): Electronic books.

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UID:

Umfang: 1 online resource (156 pages)

Ausgabe: 1st ed. 2024.

ISBN: 3-031-57896-1

Serie: SpringerBriefs in Research and Innovation Governance,

Inhalt: Open access. This open-access book discusses vulnerability and the protection-inclusion dilemma of including those who suffer from serious poverty, severe stigma, and structural violence in research. Co-written with representatives from indigenous peoples in South Africa and sex workers in Nairobi, the authors come down firmly on the side of inclusion. In the spirit of leaving no one behind in research, the team experimented with data collection methods that prioritize research participant needs over researcher needs. This involved foregoing the collection of personal data and community researchers being involved in all stages of the research. In the process, the term ‘vulnerability’ was illuminated across significant language barriers as it was defined by indigenous peoples and sex workers themselves. The book describes a potential alternative to exclusion from research that moves away from traditional research methods. By ensuring that the research is led by vulnerable groups for vulnerable groups, it offers an approach that fosters trust and collaboration with benefits for the community researchers, the wider community as well as research academics. Those living in low-income settings, in dire situations that are summarized with the term ‘vulnerability’ know best what their problems are and which priorities they have. To exclude them from research for their own protection is a patronizing approach which insinuates that researchers and research ethics committees know best. The team from this book have shown that minimally risky and minimally burdensome research tailored towards the needs of highly marginalized and stigmatized communities can be scientifically valuable as well as inclusive and equitable. I congratulate them. Prof. Klaus Leisinger, President Global Values Alliance, Former personal advisor to Kofi Annan on corporate responsibility .

Anmerkung: Chapter 1. Leaving no-one behind in Research - The Introduction -- Chapter 2. Exclusion of Vulnerable Populations from Research? -- Chapter 3. Exclusion from Research – the complex dynamics around two vulnerable communities’ experiences of participation, inclusion, and exclusion in research -- Chapter 4. Vulnerability lost in translation? -- Chapter 5. Research without obtaining personal data for research purposes -- Chapter 6. Strengthening research teams through community researchers -- Chapter 7. Leaving no-one behind in Research – Recommendations for the Way Forward -- Book Backmatter.

Weitere Ausg.: ISBN 3-031-57895-3

Sprache: Englisch

DOI: 10.1007/978-3-031-57896-0

UID:

Umfang: 1 Online-Ressource (156 pages)

Ausgabe: 1st ed. 2024

ISBN: 9783031578960

Serie: SpringerBriefs in Research and Innovation Governance

Inhalt: Open access. This open-access book discusses vulnerability and the protection-inclusion dilemma of including those who suffer from serious poverty, severe stigma, and structural violence in research. Co-written with representatives from indigenous peoples in South Africa and sex workers in Nairobi, the authors come down firmly on the side of inclusion. In the spirit of leaving no one behind in research, the team experimented with data collection methods that prioritize research participant needs over researcher needs. This involved foregoing the collection of personal data and community researchers being involved in all stages of the research. In the process, the term 'vulnerability' was illuminated across significant language barriers as it was defined by indigenous peoples and sex workers themselves. The book describes a potential alternative to exclusion from research that moves away from traditional research methods. By ensuring that the research is led by vulnerable groups for vulnerable groups, it offers an approach that fosters trust and collaboration with benefits for the community researchers, the wider community as well as research academics. Those living in low-income settings, in dire situations that are summarized with the term 'vulnerability' know best what their problems are and which priorities they have. To exclude them from research for their own protection is a patronizing approach which insinuates that researchers and research ethics committees know best. The team from this book have shown that minimally risky and minimally burdensome research tailored towards the needs of highly marginalized and stigmatized communities can be scientifically valuable as well as inclusive and equitable. I congratulate them. Prof. Klaus Leisinger, President Global Values Alliance, Former personal advisor to Kofi Annan on corporate responsibility

Anmerkung: Chapter 1. Leaving no-one behind in Research -- The Introduction -- Chapter 2. Exclusion of Vulnerable Populations from Research? -- Chapter 3. Exclusion from Research -- the complex dynamics around two vulnerable communities' experiences of participation, inclusion, and exclusion in research -- Chapter 4. Vulnerability lost in translation? -- Chapter 5. Research without obtaining personal data for research purposes -- Chapter 6. Strengthening research teams through community researchers -- Chapter 7. Leaving no-one behind in Research -- Recommendations for the Way Forward -- Book Backmatter.

Weitere Ausg.: Erscheint auch als ISBN 3031578953

Sprache: Englisch

URL: kostenfrei

Mehr zum Autor: Schröder, Doris 1963-

UID:

Umfang: XIX, 145 p. 18 illus., 12 illus. in color. , online resource.

Ausgabe: 1st ed. 2024.

ISBN: 9783031578960

Serie: SpringerBriefs in Research and Innovation Governance,

Inhalt: Open access. This open-access book discusses vulnerability and the protection-inclusion dilemma of including those who suffer from serious poverty, severe stigma, and structural violence in research. Co-written with representatives from indigenous peoples in South Africa and sex workers in Nairobi, the authors come down firmly on the side of inclusion. In the spirit of leaving no one behind in research, the team experimented with data collection methods that prioritize research participant needs over researcher needs. This involved foregoing the collection of personal data and community researchers being involved in all stages of the research. In the process, the term 'vulnerability' was illuminated across significant language barriers as it was defined by indigenous peoples and sex workers themselves. The book describes a potential alternative to exclusion from research that moves away from traditional research methods. By ensuring that the research is led by vulnerable groups for vulnerable groups, it offers an approach that fosters trust and collaboration with benefits for the community researchers, the wider community as well as research academics. Those living in low-income settings, in dire situations that are summarized with the term 'vulnerability' know best what their problems are and which priorities they have. To exclude them from research for their own protection is a patronizing approach which insinuates that researchers and research ethics committees know best. The team from this book have shown that minimally risky and minimally burdensome research tailored towards the needs of highly marginalized and stigmatized communities can be scientifically valuable as well as inclusive and equitable. I congratulate them. Prof. Klaus Leisinger, President Global Values Alliance, Former personal advisor to Kofi Annan on corporate responsibility .

Anmerkung: Chapter 1. Leaving no-one behind in Research - The Introduction -- Chapter 2. Exclusion of Vulnerable Populations from Research? -- Chapter 3. Exclusion from Research - the complex dynamics around two vulnerable communities' experiences of participation, inclusion, and exclusion in research -- Chapter 4. Vulnerability lost in translation? -- Chapter 5. Research without obtaining personal data for research purposes -- Chapter 6. Strengthening research teams through community researchers -- Chapter 7. Leaving no-one behind in Research - Recommendations for the Way Forward -- Book Backmatter.

In: Springer Nature eBook

Weitere Ausg.: Printed edition: ISBN 9783031578953

Weitere Ausg.: Printed edition: ISBN 9783031578977

Weitere Ausg.: Printed edition: ISBN 9783031578984

Sprache: Englisch

DOI: 10.1007/978-3-031-57896-0

URL: https://doi.org/10.1007/978-3-031-57896-0