UID:
almahu_9949890966202882
Umfang:
1 online resource (xi, 178 pages)
ISBN:
0429341032
,
9781000225167
,
100022516X
,
9781000225143
,
1000225143
,
9781000225150
,
1000225151
,
9780429341038
Serie:
Earthscan risk in society series
Inhalt:
"This volume presents the ethical implications of risk information as related to genetics and other health data for policy decisions at clinical, research and societal levels. Ethical, Social and Psychological Impacts of Genomic Risk Communication examines the introduction of new types of health risk information based on faster, cheaper and larger sets of genetic or genomic analysis. Synthesising the results of a five-year interdisciplinary project, it explores the unsolved ethical and social questions around the sharing of this data, such as: What is best practice in risk communication? What are the normative presumptions and ethical consequences of an increased individual responsibility for ones' health? And how does one deal with the gap between the knowledge of risk and the lack of therapeutic options which often exist for complex diseases, such as dementia or some types of cancer? Drawing on contributions from over twenty experts in the field, this collection examines these questions from a liberal bioethics' perspective, advocating for contextual and cultural-sensitive ethical discussions. This book will be of great interest to students and scholars of theoretical and clinical medical ethics, medical sociology, risk communication and ethics of risk, as well as professionals in clinical genetics"--
Anmerkung:
Genomic Medicine in 2025-2030 / Martina C. Cornel and GertJan van Ommen -- Genomic Risk Perception and Implications for Patient Outcomes from Genetic Counselling / Marion McAllister -- Genomic and Biological Risk Profiling : From Medicalization to Empowerment / Mats G. Hansson, Marie Falahee and Karim Raza -- On Patients' Difficulties in Understanding Medical Risks and the Aims of Clinical Risk Communication : "They don't really understand" / Ulrik Kihlbom -- Ethical Consideration about Health Risk Communication and Professional Responsibility / Silke Schicktanz -- Uncertainty and Risk Perception in the Context of Personalized Medicine : How do Familial Relationships Matter? / Sabine Wöhlke, Marie Falahee and Katharina Beier -- Direct to Consumer Personal Genomic Testing and Trust : A Comparative Focus Group Study of Lay Perspectives in Germany, Israel, the Netherlands and the UK / Manuel Schaper, Aviad Raz, Marie Falahee, Karim Raza, Danielle Timmermans, Elisa Garcia Gonzalez, Silke Schicktanz and Sabine Wöhlke -- The Application of New Technologies to Improve Literacy among the General Public and to Promote Informed Decisions in Genomics / Serena Oliveri, Renato Mainetti, Ilaria Cutica, Alessandra Gorini and Gabriella Pravettoni -- Algorithms as Emerging Policy Tools in Medicine : Opportunities and Challenges Ahead / Frederick Bouder.
Weitere Ausg.:
Print version: Ethical, social and psychological impacts of genomic risk communication Abingdon, Oxon ; New York, NY : Routledge, 2021. ISBN 9780367356699
Sprache:
Englisch
Schlagwort(e):
Electronic books
DOI:
10.4324/9780429341038
URL:
https://www.taylorfrancis.com/books/9780429341038
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