UID:
almafu_9961161684902883
Format:
1 online resource (xii, 264 pages) :
,
digital, PDF file(s).
Edition:
1st ed.
ISBN:
1-009-00664-9
,
1-009-00673-8
,
1-009-00812-9
Content:
How are siblings who were conceived using the same sperm or egg donor making connections in the absence of legal support? What is it like to discover you are part of a 50+ donor sibling group? How are donor conceived adults using new technologies to connect with genetic family and explore their identity? This edited collection considers the donor linking experiences of donor conceived adults and children, recipient parents, and donors in a global context. It includes contributions from legal academics, social workers, sociologists, psychologists, and policy makers who work in the assisted conception field. As a result, it will be of particular interest to scholars of reproductive law, sociology, and digital media and reproductive technologies. It will also engage those following the debate around donor linking and the use of do-it-yourself technologies, including direct-to-consumer genetic testing and social media.
Note:
Title from publisher's bibliographic system (viewed on 14 Jul 2023).
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Cover -- Half-title page -- Title page -- Copyright page -- Dedication -- Contents -- List of Tables -- List of Contributors -- Acknowledgements -- Donor-Conceived Families: Relatedness and Regulation in the Digital Age -- Overview of the Collection -- Part I: 'DIY' Donor Linking: Issues and Implications -- Part II: Children's and Adults' Lived Experiences in Diverse Donor-Linked Families -- Part III: Institutionalised Resistance to Openness -- References -- Part I 'DIY' Donor Linking: Issues and Implications -- 1 Accessing Origins Information: The Implications of Direct-to-Consumer Genetic Testing for Donor-Conceived People and Formal Regulation in the United Kingdom -- 1.1 Introduction -- 1.2 The Official Route to Accessing Information: Publicly Funded Donor Conception Registers -- 1.2.1 The Human Fertilisation and Embryology Authority (HFEA) Register -- 1.2.2 UK Donor Conceived Register (DCR) -- 1.3 The Unofficial Route to Accessing Information: Direct-to-Consumer Genetic Testing (DTCGT) -- 1.4 The Right to Know and the Right to Choose -- 1.5 Donor-Conceived People's Voices - The Role of DTCGT -- 1.6 Some Challenges Raised by DTCGT for DCP -- 1.7 Donor-Conceived People's Voices - Taking Control -- 1.8 Conclusion -- References -- 2 Recipient Parents Using Do-It-Yourself Methods to Make Early Contact with Donor Relatives: Is There Still a Place for Law? -- 2.1 Introduction -- 2.2 Background: The Law -- 2.3 Methodology -- 2.4 Motivations for Seeking Early Contact -- 2.5 How Did RPs Locate Donor Relatives? -- 2.6 Donor Linking via Fertility Clinics -- 2.7 Is There Still a Place for Law? -- 2.8 Conclusion -- References -- 3 Donor-Linked Families Connecting through Social Media: Creeping and Contact on Facebook -- 3.1 Introduction -- 3.2 The Normalisation of Social Surveillance Online -- 3.3 About the Families of Strangers? Study -- 3.4 Results.
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3.4.1 Obtaining a Name or Number: Sparking the Social Media Search -- 3.4.2 Family Resemblances and Facebook Photos -- 3.4.3 The Perceived Ethics of Online Surveillance -- 3.4.4 From Observation to Contact: Messaging, Friending and 'Likes' on Facebook -- 3.4.5 The Uses and Abuses of 'Likes' -- 3.4.6 Creeping in the Absence of Contact -- 3.5 Concluding Thoughts -- References -- 4 The Contact Expectations of Australian Sperm Donors Who Connect with Recipients via Online Platforms -- 4.1 Introduction -- 4.2 The Mainstreaming of Informal Donation -- 4.3 Qualitative Research with Online Sperm Donors -- 4.3.1 Why Do Donors Choose Informal Online Donation? -- 4.4 Expectations and Experiences of Contact -- 4.4.1 Where Expectations Aligned -- 4.4.2 Negotiations and Renegotiations -- 4.5 Conclusion -- References -- 5 Parents' and Offsprings' Experience of Insemination Fraud: A Qualitative Study -- 5.1 Introduction -- 5.2 Literature Review -- 5.3 Presentation of the Study -- 5.3.1 Profile of Participants -- 5.3.2 Data Analysis -- 5.4 Results -- 5.4.1 Trajectory of the Discovery of Substitution -- 5.4.2 Feelings When Discovering the Substitution -- 5.4.2.1 Steps Prior to Discovery -- 5.4.2.2 Confirmation of Substitution -- 5.4.3 Disclosure of the Substitution to Children -- 5.4.3.1 Concerns about Disclosure -- 5.4.3.2 The Disclosure Itself -- 5.4.3.3 Children's Feelings Regarding the Disclosure -- 5.5 Discussion -- 5.6 Conclusion -- References -- Part II Children's and Adults' Lived Experiences in Diverse Donor-Linked Families -- 6 The Importance of Donor Siblings to Teens and Young Adults: Who Are We to One Another? -- 6.1 The Study and Methods -- 6.2 "It's Weird That We Are Related but Don't Know Each Other at All" -- 6.3 "I Find Pieces of Myself through My Donor Siblings" -- 6.4 "Just Because They Have the Same Genetics, Does That Mean They're My Family?".
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6.4.1 Buildup -- 6.4.2 First Contact -- 6.4.3 Relationship Building -- 6.5 Deciding among My Siblings? Picking and Choosing -- 6.6 Conclusion -- Acknowledgements -- References -- 7 The Experiences of Donor-Conceived People Making Contact with Same-Donor Offspring through Fiom's Group Meetings -- 7.1 Introduction -- 7.2 Donor-Conceived People's Experiences of Meeting Multiple Same-Donor Offspring -- 7.3 Fiom's Practice of Running Group Meetings for Same-Donor Offspring -- 7.3.1 Environmental Conditions -- 7.3.2 Participant Characteristics -- 7.3.2.1 Composition -- 7.3.2.2 Size -- 7.3.3 Group Conditions -- 7.3.3.1 The Goal of the Group Meeting -- 7.3.3.2 The Structural Form -- 7.3.3.3 Development -- 7.4 Is There a Role for Regulators/Policy Makers? -- 7.5 Conclusions -- References -- 8 'It's All on Their Terms': Donors Navigating Relationships with Recipient Families in an Age of Openness -- 8.1 Introduction -- 8.2 The Curious Connections Study: Investigating How Donors 'Do' Openness -- 8.3 Assigning Relational Authority to Recipient Families -- 8.4 Relationality and the Challenge of Assigning Relational Authority -- 8.4.1 Lizzie -- 8.4.2 Jack -- 8.4.3 Kylie and Charlotte -- 8.5 Conclusion: The Ethics of Openness and Its Ramifications -- References -- 9 On Familial Haunting: Donor-Conceived People's Experiences of Living with Anonymity and Absence -- 9.1 Cultures of Anonymity and Secrecy: Ghostly Fathers -- 9.2 On Haunting -- 9.3 Methods -- 9.3.1 Data Collection -- 9.3.2 Data Analysis -- 9.4 Findings -- 9.4.1 Complex Personhood: Accommodating the Ghost Within -- 9.4.2 Temporal (Re)Configurations: Anticipation, Waiting, Loss -- 9.4.3 Pull towards the Unknown: Relationality, Ambivalence and Affective Forces -- 9.5 Conclusions -- References -- 10 Assisted Reproduction and Making Kin Connections between Māori and Pākehā in Aotearoa New Zealand.
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10.1 Introduction -- 10.2 Information Sharing in Aotearoa -- 10.3 Conceptual Framing -- 10.4 Methods and Ethical Guidelines -- 10.5 Knowing Where You Come From -- 10.6 Making Up Kin -- 10.7 Conclusions -- Acknowledgements -- References -- 11 'Spunkles', Donors, and Fathers: Men, Trans/Masculine, and Non-Binary People's Accounts of Sperm Donors and Their Relationships to Children -- 11.1 Introduction -- 11.2 Social Scripting and Trans Reproduction -- 11.3 The Study -- 11.4 Thematic Analysis of Interviews -- 11.4.1 Theme 1: Navigating the Donor's Role -- 11.4.2 Theme 2: Kinship in the Context of Donor Conception -- 11.4.3 Theme 3: Children's Agency in Directing Relationships -- 11.5 Conclusion -- References -- Part III Institutionalised Resistance to Openness -- 12 Knowing Origins -- 12.1 Introduction -- 12.2 The US Approach to Donor Conception -- 12.2.1 Secrecy -- 12.2.2 Existing Regulation -- 12.3 Legal Challenges to Anonymity -- 12.3.1 Caselaw -- 12.3.1.1 Perry-Rogers v. Fasano (2000) -- 12.3.1.2 Bobbie Jo R. v. Traci W. -- 12.3.1.3 Pasik v. Russell (2015) -- 12.3.1.4 Section Summary -- 12.3.2 Statutes -- 12.3.3 Industry Guidance -- 12.4 Opposition to Ending Anonymity -- 12.5 New Technologies and Donor Disclosure -- 12.5.1 Genetic Testing -- 12.5.2 Will We Still Need Donors? -- 12.6 Moving Forward -- Acknowledgments -- References -- 13 Donor Anonymity and the Rights of Donor-Conceived People in Japan -- 13.1 Introduction: Donor Anonymity in Japan -- 13.2 Historical and Cultural Backgrounds of Donor Anonymity in Japan -- 13.3 Public Attitudes toward Donor Conception in Japan -- 13.4 Debates and Legislation on Gamete Donor Anonymity -- 13.4.1 The Assessment Subcommittee (1998-2000) -- 13.4.2 The ART Subcommittee (2001-2003) -- 13.4.3 The ART Review Committee -- 13.4.4 Liberal Democratic Party Project Team -- 13.4.5 The Special ART Law of 2020.
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13.5 Movement to Abolish Donor Anonymity in Japan -- 13.5.1 DI Conceived People -- 13.5.2 Parents and Intended Parents of DI Children -- 13.6 Conclusions -- References -- 14 Donor Linking in the Digital Age -- 14.1 Secrecy and Openness: Is This the End of Anonymity? -- 14.2 Belonging, Bonds, and Boundaries: Navigating Dis/Connection in Donor-Linked Families -- 14.3 Relatedness and Regulation: Where to Next? -- Index.
Additional Edition:
ISBN 9781316518519
Language:
English
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