Format:
Online-Ressource (XVIII, 218 p. 16 illus, digital)
ISBN:
9781461433842
Series Statement:
Caregiving: Research • Practice • Policy
Content:
Caring for people with disabilities often becomes an all-encompassing responsibility for one or more family members. To manage the multifaceted demands, caregivers must possess strong multitasking skills, including the ability to assist with daily life tasks; provide emotional support; help with financial affairs; mediate and advocate with health care providers. Maintaining balance within their own lives can become incredibly challenging for caregivers. More often than not, providing care for family members or loved ones occurs at the expense of the caregivers well-being. And for caregivers who themselves have disabilities, it further complicates matters.Multiple Dimensions of Caregiving and Disability addresses concerns that have been long familiar to the caregiver population and examines the current state of family care for individuals with disabilities. With a lifespan perspective, this concise reference reviews the literature on specific problems of caregivers and explores which care strategies are effective, promising, or lacking in available resources and support interventions. Contributors also explore the more fluid and subjective aspects of caregiving, such as feelings, spirituality, and family roles. Suggestions for future policy improvements, particularly within the public health sector, are discussed as well.Topics covered include: Family dynamics and caregiving for people with disabilities. Parent caregiving of children with disabilities. Race, ethnicity, socioeconomic status, and caregiving. Educational, training, and support programs for caregivers. Emerging technologies to aid caregivers. Developing partnerships between caregivers and health care providers. Multiple Dimensions of Caregiving and Disability is a must-have resource for researchers, scientist-practitioners, policy makers, and graduate students across such disciplines as clinical psychology, nursing, social work, public health, medicine, and social and education policy.
Note:
Description based upon print version of record
,
Editorial Board; Foreword; Contents; About the Editors; Contributors; Chapter1 Introduction: Multiple Dimensions of Caregiving and Disability; Definitions; Genesis of the Caregiving Book Series; Caregiving Disability Issues; Concluding Comments; References; Chapter2 Family Dynamics and Caregiving for People with Disabilities; The Biopsychosocial Model; Understanding Family Systems; "Things Aren't As They Should Be:" A Family Struggleswith the Effects of Serious Illness and Disability2; Shifting Family Roles; The Confluence of Coping Styles; The Isolation of Illness and Disability
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Managing Anger and GuiltDisruption of the Individual and Family Life Cycles; Managing Loss; The Response of the Extended Family; Special Issues for Families; Genetics and Family Caregiving; Mental Disability: The Invisible; Recommendations for Practice, Education, Research, and Policy; Supporting Healthy Family Dynamics in Professional Practice; Supporting Healthy Family Dynamics Through the Education of Health Professionals; Supporting Healthy Family Dynamics Through Research; Supporting Healthy Family Dynamics Through Policy; Conclusion; References; Chapter3 Feelings of Family Caregivers
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Caregiver BurdenParents Caring for Children; Mothers as Caregivers; Fathers as Caregivers; Spouses as Caregivers; Cultural and Ethnic Differences; Discussion; References; Chapter 4Education, Training, and Support Programs forCaregivers of Individuals with Disabilities; Issues to Consider in Designing Education, Training, and Support Programs for Caregivers of Individuals with Disabilities; The Nature of the Disability and the Caregiving Requirements Related to that Disability; Current Status; Caring for Yourself as a Caregiver; Knowing How to Access Support Systems
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Being a Responsive and Respectful CaregiverEducation, Training, and Support Programs; Education, Training, and Support Provided to Caregivers of Individuals with Disabilities Through State and Local Educational Systems; Education, Training, and Support Programs Providedto Caregivers Through the Healthcare System; Education, Training, and Support Provided Through Grassroots Efforts; Research; Policy; Future Directions; Practice; Research; Policy/Advocacy; References; Chapter5 Parent Caregivers of Children with Disabilities; How are Parents Affected?; Employment; Stress; Financial Burden
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Emotional and SocialCare Responsibilities; Moderators and Mediators; Mental Health; Physical Health; Use of Health Care; Interventions to Help Caregivers; Policy; Future Directions; References; Chapter 6Neither Prepared Nor Rehearsed: The Role ofPublic Health in Disability and Caregiving; Dimensions of Disability; Definition of Disability; Increasing Population; Changing Concepts of Disability; Impact of Disability upon the Family; Elements of a Conceptual Framework; Health of Caregivers; Directions for Research, Policy Development, and Interventions; Conclusion; Appendix A; References
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Chapter 7Race/Ethnicity, Culture, and SocioeconomicStatus and Caregiving of Personswith Disabilities
Additional Edition:
ISBN 9781461433835
Additional Edition:
Buchausg. u.d.T. ISBN 978-1-461-43383-5
Language:
English
DOI:
10.1007/978-1-4614-3384-2
URL:
Volltext
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