In:
Journal of Genetic Counseling, Wiley, Vol. 11, No. 4 ( 2002-08), p. 241-243
Abstract:
In November 2000, the Genetic Services Committee of the National Society of Genetic Counselors (NSGC) convened a working group to draft a position paper on patenting of DNA‐sequences. The mandate of the group was to produce general position statements that support the perspective and needs of consumers of DNA‐based genetic tests and therapies (our patients and their families) and participants in DNA‐based genetic research. After review and discussion of the literature on DNA‐sequence patenting issues, the working group drafted position statement points that support current United States Patent and Trademark Office (USPTO) guidelines; broad licensing of DNA‐sequence patents; nonenforcement of DNA‐sequence patents in noncommercial research; reasonable royalty rates; an informed consent process for research participants that discloses whether they can share in any financial rewards relating to the project; the development of guidelines for licensing of DNA‐sequence patents; and the establishment of oversight organizations to monitor licensing of DNA‐sequence patents. These position statements were approved by the NSGC Board of Directors in the fall of 2001.
Type of Medium:
Online Resource
ISSN:
1059-7700
,
1573-3599
DOI:
10.1023/A:1016374314605
Language:
English
Publisher:
Wiley
Publication Date:
2002
detail.hit.zdb_id:
2016899-8
SSG:
12
SSG:
5,2