In:
Journal of Crohn's and Colitis, Oxford University Press (OUP), Vol. 16, No. 3 ( 2022-03-14), p. 379-388
Abstract:
In order to provide high-quality care, providers need to understand their patients’ goals and concerns. This study aims to identify and predict the goals and concerns prioritised by patients with inflammatory bowel disease [IBD] in the outpatient setting. Methods Mixed-methods analysis was performed to identify the types, frequencies, and predictors of IBD patients’ goals and concerns using 4873 surveys collected over 2016–2019 at 25 gastroenterology clinics across the USA participating in the Crohn’s & Colitis Foundation’s IBD Qorus Learning Health System. Results Patients with IBD most often prioritised goals and concerns related to symptoms/disease activity [50%] and clinical course/management [20%] , whereas psychosocial/quality of life [12%] and medication [6%] concerns were less frequent. Females (odds ratio [OR] 22.1, 95% confidence interval [CI] 5.3–91.5) and patients in clinical remission [OR 2.2, 95% CI 1.2–4.1] were more likely to prioritise family planning. Patients & gt;60 years old [OR 3.1, 95% CI 1.5–6.5] and patients with active disease [OR 3.2, 95% CI 1.4–7.6] were more often concerned about travelling. Smokers were more often concerned about nutrition [OR 4.2, 95% CI 1.9–9.2]. Surgery was more often a concern of patients with perianal Crohn’s disease [OR 2.1, 95% CI 1.2–3.5] , active disease [OR 1.9, 95% CI 1.1–3.4], and those with recent hospitalisations [OR 2.5, 95% CI 1.2–5.4] . Conclusions IBD patients prioritised the remission of physical symptoms as treatment goals and they were less frequently concerned about medications and their side effects. Patients’ demographics, IBD characteristics, and health care utilisation patterns can predict specific types of concerns/goals.
Type of Medium:
Online Resource
ISSN:
1873-9946
,
1876-4479
DOI:
10.1093/ecco-jcc/jjab142
Language:
English
Publisher:
Oxford University Press (OUP)
Publication Date:
2022
detail.hit.zdb_id:
2389631-0
