In:
Respiration, S. Karger AG, Vol. 101, No. 1 ( 2022), p. 76-83
Kurzfassung:
〈 b 〉 〈 i 〉 Background: 〈 /i 〉 〈 /b 〉 Self-management is considered important in the management of patients with idiopathic pulmonary fibrosis (IPF) or sarcoidosis. However, data about the degree of activation for self-management is lacking. 〈 b 〉 〈 i 〉 Objectives: 〈 /i 〉 〈 /b 〉 The aim of the study was to determine the degree of activation for self-management in patients with IPF or sarcoidosis using the Patient Activation Measure (PAM) and to evaluate the association between PAM scores, clinical characteristics, and health-related outcomes. 〈 b 〉 〈 i 〉 Study Design and Methods: 〈 /i 〉 〈 /b 〉 This cross-sectional prospective study assessed besides the PAM also demographics, lung function, dyspnea (modified Medical Research Council [mMRC]), fatigue (Checklist Individual Strength-Fatigue [CIS-Fatigue] ), anxiety/depression (Hospital Anxiety and Depression Scale [HADS-A/HADS-D]), and generic health status (EuroQol five-dimensional-five-level [EQ-5D-5L] ). 〈 b 〉 〈 i 〉 Results: 〈 /i 〉 〈 /b 〉 Mean PAM was 55.0 (9.1) points in patients with IPF ( 〈 i 〉 n 〈 /i 〉 = 59) and low levels of patient activation for self-management (PAM ≤55.1 points) were present in 56% of the patients. PAM Scores correlated significantly ( 〈 i 〉 p 〈 /i 〉 & #x3c; 0.05) with mMRC (ρ = −0.476), HADS-A (ρ = −0.326), HADS-D (ρ = −0.459), and EQ-5D-5L (ρ = 0.393). In patients with sarcoidosis ( 〈 i 〉 n 〈 /i 〉 = 59), the mean PAM score was 55.7 (11.0) points, and 46% of the patients reported low PAM levels. Significant correlations were found with mMRC (ρ = -0.356), HADS-A (ρ = −0.394), HADS-D (ρ = −0.478), and EQ-5D-5L (ρ = 0.313). 〈 b 〉 〈 i 〉 Conclusion: 〈 /i 〉 〈 /b 〉 About half of the outpatients with IPF or sarcoidosis have a low degree of activation for self-management, and these patients generally report more dyspnea, anxiety, depression, and a lower health status. Whether patients with a low degree of activation can be successful in self-managing their disease remains to be determined.
Materialart:
Online-Ressource
ISSN:
0025-7931
,
1423-0356
Sprache:
Englisch
Verlag:
S. Karger AG
Publikationsdatum:
2022
ZDB Id:
1464419-8
