In:
Journal of Law, Medicine & Ethics, Cambridge University Press (CUP), Vol. 47, No. 1 ( 2019), p. 12-20
Abstract:
Drawing on a landscape analysis of existing data-sharing initiatives, in-depth interviews with expert stakeholders, and public deliberations with community advisory panels across the U.S., we describe features of the evolving medical information commons (MIC). We identify participant-centricity and trustworthiness as the most important features of an MIC and discuss the implications for those seeking to create a sustainable, useful, and widely available collection of linked resources for research and other purposes.
Type of Medium:
Online Resource
ISSN:
1073-1105
,
1748-720X
DOI:
10.1177/1073110519840480
Language:
English
Publisher:
Cambridge University Press (CUP)
Publication Date:
2019
detail.hit.zdb_id:
2052584-9
SSG:
2