Format:
1 Online-Ressource
Edition:
1st edition
ISBN:
9780191918919
Series Statement:
Oxford scholarship online
Content:
Biobanks are critical infrastructure for medical research but they are also the subject of considerable ethical and legal uncertainty. Given that biobanks process large quantities of genomic data, questions have emerged as to how genetic privacy should be protected. What types of genetic privacy rights and rights holders should be protected and to what extent? Since 25th May 2018 the General Data Protection Regulation (GDPR) has applied and now occupies a key position in the European legal framework for the regulation of biobanking. This book takes an in-depth look at the function, problems, and opportunities presented by European data protection law under the GDPR as a framework for the protection of genetic privacy in biobanking in Europe.
Additional Edition:
ISBN 9780192896476
Additional Edition:
Erscheint auch als Druck-Ausgabe Hallinan, Dara Protecting genetic privacy in biobanking through data protection law Oxford : Oxford University Press, 2021 ISBN 9780192896476
Additional Edition:
ISBN 0192896474
Language:
English
Keywords:
Europäische Union
;
Biobank
;
Datenschutz
DOI:
10.1093/oso/9780192896476.001.0001
URL:
Volltext
(lizenzpflichtig)