Format:
Online-Ressource
ISSN:
1421-9964
Content:
Introduction: Prenatal counseling about maternal-fetal surgery can be traumatic and confusing for pregnant people. It can also be technically and emotionally complex for clinicians. As maternal-fetal surgery rapidly advances and becomes more common, more evidence is needed to inform counseling practices. The objective of this study was to develop a deeper understanding of the methods clinicians currently use to train for and provide counseling, as well as their needs and recommendations for future education and training. Methods: We used interpretive description methods and interviewed interprofessional clinicians who regularly counsel pregnant people about maternal-fetal surgery. Results: We conducted 20 interviews with participants from 17 different sites who were maternal-fetal medicine specialists (30%), pediatric surgeons (30%), nurses (15%), social workers (10%), a genetic counselor (5%), a neonatologist (5%), and a pediatric subspecialist (5%). Most were female (70%), non-Hispanic white (90%), and practiced in the Midwest (50%). We identified four overarching themes: (1) contextualizing maternal-fetal surgery counseling; (2) establishing shared understanding; (3) supporting decision-making; and (4) training for maternal-fetal surgery counseling. Within these themes, we identified key practice differences among professions, specialties, institutions, and regions. Conclusion: Participants are committed to practicing informative and supportive counseling to empower pregnant people to make autonomous decisions about maternal-fetal surgery. Nevertheless, our findings indicate a dearth of evidence-based communication practices and guidance. Participants identified significant systemic limitations affecting pregnant people’s decision-making options related to maternal-fetal surgery.
In:
volume:50
In:
number:5
In:
year:2023
In:
pages:353-367
In:
extent:15
In:
Fetal diagnosis and therapy, Basel : Karger, 1986-, 50, Heft 5 (2023), 353-367 (gesamt 15), 1421-9964
Language:
English
URN:
urn:nbn:de:101:1-2023110123154422296000
URL:
https://doi.org/10.1159/000531535
URL:
https://nbn-resolving.org/urn:nbn:de:101:1-2023110123154422296000
URL:
https://d-nb.info/1308255942/34
URL:
https://karger.com/fdt/article-pdf/50/5/353/4037245/000531535.pdf
URL:
https://karger.com/doi/10.1159/000531535
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