Format:
1 online resource (264 pages)
ISBN:
9781139141789
Content:
Practical overview of ethical issues arising in pediatric practice, with a case-based approach that grounds bioethical concepts in real-life situations.
Content:
Cover -- Half-title -- Title -- Copyright -- Contents -- List of contributors -- Preface -- Section 1 Core issues in clinical pediatric ethics -- 1 Pediatric decision-making: informed consent, parental permission, and child assent -- Case narrative -- Introduction to ethical issues -- Ethical principles and discussion -- Parental permission and surrogate decision-making -- Assent is not consent -- Assent and decision-making capacity -- Barriers influencing a child's ability to participate in decisions -- Determining the validity of a child's decision -- Balancing children's, parents', and caregivers' goals -- Suggestions for a practical decision-making model with appropriate roles for children, parents, and physicians -- Conclusions and practical suggestions -- Case resolution -- References -- 2 Pediatric decision-making: adolescent patients -- Case narrative -- General ethical and legal issues in decision-making for adolescents -- Adolescent autonomy and decision-making capacity -- Autonomy -- Capacity -- Parental authority - source and limits -- Legal authority of minors to make decisions -- Public health exceptions -- Emancipated minor exception -- Mature minor exception -- Conflicts between adolescents, parents, and clinicians -- Case resolution -- Notes -- References -- 3 Parental refusals of recommended medical interventions -- Case narrative -- Introduction -- Discussion of ethical issues -- Practical summary and recommendations -- Resolution of case and discussion -- References -- 4 Adolescent confidentiality -- Case narrative: conflicts between confidentiality and care -- Summary of emotional, health care, and ethical issues -- Ethical principles and discussion -- Practical summary and recommendation -- Case resolution -- References -- 5 Refusals of treatment in adolescents and young adults -- Case narrative.
Note:
Description based on publisher supplied metadata and other sources
,
Cover; Half-title; Title; Copyright; Contents; List of contributors; Preface; Section 1 Core issues in clinical pediatric ethics; 1 Pediatric decision-making: informed consent, parental permission, and child assent; Case narrative; Introduction to ethical issues; Ethical principles and discussion; Parental permission and surrogate decision-making; Assent is not consent; Assent and decision-making capacity; Barriers influencing a child's ability to participate in decisions; Determining the validity of a child's decision; Balancing children's, parents', and caregivers' goals
,
Suggestions for a practical decision-making model with appropriate roles for children, parents, and physiciansConclusions and practical suggestions; Case resolution; References; 2 Pediatric decision-making: adolescent patients; Case narrative; General ethical and legal issues in decision-making for adolescents; Adolescent autonomy and decision-making capacity; Autonomy; Capacity; Parental authority - source and limits; Legal authority of minors to make decisions; Public health exceptions; Emancipated minor exception; Mature minor exception
,
Conflicts between adolescents, parents, and cliniciansCase resolution; Notes; References; 3 Parental refusals of recommended medical interventions; Case narrative; Introduction; Discussion of ethical issues; Practical summary and recommendations; Resolution of case and discussion; References; 4 Adolescent confidentiality; Case narrative: conflicts between confidentiality and care; Summary of emotional, health care, and ethical issues; Ethical principles and discussion; Practical summary and recommendation; Case resolution; References; 5 Refusals of treatment in adolescents and young adults
,
Case narrativeGrowing pains: of teens and a profession; Assessing adolescent capacity: the autonomy paradox; The trump card: are we willing to use physical force?; Case resolution and conclusion; References; 6 Family beliefs and the medical care of children; Case narrative; Introduction of ethical issues; Ethical principles and discussion; Questions of rights; A secondary case; Refusal by a child and general points of law; Summary of key points; Resolution of the case; References; 7 Fidelity and truthfulness in the pediatric setting: withholding information from children and adolescents
,
Case narrativeIntroduction; Ethical principles: fidelity and truthfulness; Ethics in practice; Amanda: working towards a resolution; Acknowledgment; References; Further reading; 8 Fidelity and truthfulness: disclosure of errors; Case narrative: medical misadventure and the case of Chloe; Discussion of issues; Effective disclosure of errors; Resolution of case; References; 9 Requests for "non-therapeutic" interventions in children: male circumcision; Introduction; Case narrative; Summary of ethical issues; Background on circumcision; History; Medical risks and benefits
,
Ethical principles for non-therapeutic interventions
,
Part I. Core Issues in Clinical Pediatric Ethics. 1. Pediatric decision-making: informed consent, parental permission, and child assent / Yoram Unguru2. Pediatric decision-making: adolescent patients / Jessica Berg -- 3. Refusal of recommended treatment / Douglas S. Diekema -- 4. Adolescent confidentiality / Malcolm Parker -- 5. Adolescent refusals of intervention (and the non-compliant adolescent) / Maureen Kelley -- 6. Family beliefs and the medical care of children / Roger Worthington and Mark R. Mercurio -- 7. Fidelity and truthfulness in the pediatric setting: withholding information from children and adolescents / Christine Harrison -- 8. Fidelity and truthfulness: disclosure of errors / Tom Gallagher and David Loren -- 9. Requests for 'non-therapeutic' interventions in children / Anthony J. Thomas and Charlisse Caga-Anan -- Part II. Ethical Issues at the Beginning of Life: Perinatology and Neonatology. 10. Maternal-fetal conflicts / Mark R. Mercurio and Christy Cummings -- 11. Fetal interventions and fetal care centers / Steven Leuthner -- 12. Assisted reproductive technology, multiple births, and the welfare of the child / Jeffrey L. Ecker and Howard L. Minkoff -- 13. Preimplantation and prenatal genetic testing for inherited diseases, dispositions, and traits / Jeff Botkin -- 14. Decision-making in the delivery room / Mark R. Mercurio -- 15. Withholding and withdrawing life-sustaining intervention from neonates / Andrew Beckstrom and David Woodrum -- 16. The role of QoL assessments in the delivery room and NICU / A. Wyatt; 17. International variations in newborn care / Annie Janvier and John D. Lantos -- Part III. Ethical Issues at the End of Life in Pediatrics. 18. End-of-life care / Joel Frader and Kelly Michelson -- 19. Futility / Norman Fost -- 20. Advance directives and DNR orders / Jeffrey Burns -- 21. Definition of death / Geoffrey Miller -- 22. Physician aid in dying in children: physician-assisted death -- terminal sedation and children / Alex Kon -- 23. The Groningen protocol / Eduard Verhagen -- 24. Symptom management in dying children / Marcia Levetown -- Part IV. Ethical Issues Posed by Advances in Medical Technology and Science. 25. Organ transplantation and the child donor / Joel Frader and Aviva Goldberg -- 26. Enhancement technologies and children / Todd Varness -- 27. Cochlear implants and deaf children / Halle Salas -- 28. Management of disorders of sexual differentiation / Joel Frader -- 29. Sterilizing procedures in minors with cognitive disabilities / Don Brunnquell -- 30. Parental requests for intervention on behalf of children with severe life-limiting conditions with poor quality of life (trisomy 13 and 18) / Ben Wilfond -- 31. Genetic screening and testing / Lainie F. Ross -- 32. The introduction of innovative technology in practice / John D. Lantos -- 33. Human subjects research involving children / Erik D. Kodish and Valerie Blake -- Part V. Children, Public Health and Justice. 34. Resource allocation and triage in disasters and pandemics / Jeffrey Burns -- 35. Parental refusals of vaccination and school vaccine mandates: balancing parental freedom, child welfare, and public health / Douglas Opel and Douglas S. Diekema -- 36. Solid organ transplantation and children with developmental disabilities / David C. Magnus -- 37. Special issues related to the care of orphans / Maureen Kelley -- Part VI. Special Topics in Pediatric Ethics: 38. Conflicts of interest, relationships with industry, and gifts / D. Micah Hester -- 39. Training issues and learning new procedures / Armand Antommaria -- 40. Boundary issues / Ian Holzman -- 41. Ethics consultation and ethics committees / Denise Dudzinski -- 42. Physician coverage of community events that appear to conflict with public health and professional goals: the case of physician coverage at youth boxing events / Stephanya Shear and Douglas Opel -- 43. The impaired, incompetent, or unethical provider / Douglas S. Diekema -- Index.
Additional Edition:
9780521173612
Additional Edition:
Erscheint auch als Druck-Ausgabe 9780521173612
Language:
English
Bookmarklink
